Show HN: Autism Simulator

(autism-simulator.vercel.app)

749 points by joshcsimmons 2 days ago

896 comments | 3 pages

Hey all, I built this. It’s not trying to capture every autistic experience (that’d be impossible). It’s based on my own lived experience as well as that of friends on the spectrum.

I'm trying to give people a feel for what masking, decision fatigue, and burnout can look like day-to-day. That’s hard to explain in words, but easier to show through choices and stats. I'm not trying to "define autism".

I’ve gotten good feedback here about resilience, meds, and difficulty tuning. I’ll keep tweaking it. If even a few people walk away thinking, "ah, maybe that’s why my coworker struggles in those situations," then it’s worth it.

Appreciate everyone who’s tried it and shared thoughts.

Glyptodon 2 days ago

A lot of the behaviors this seems to force I don't understand - like railroading whether to skip breakfast or not. I am well aware that for kids with autism frequently there are feeding issues, but what's going on in the "simulation" is very not clear to me.

Similarly, I don't understand the decisions related to the driving environment: it appears to be a personal vehicle, surely you, as the owner, can make the interior environment something that's as close to personally comfortable as possible? Maybe I'm missing the takeaway from the driving decisions.

Related, what is or isn't masking seems very confused. To begin with, it's not just code for "hiding or not hiding behaviors that appear socially irregular." But it's also not the case that deciding whether to participate in a non-working-hours event is or isn't masking in of itself.

Presenting behavior in a socialized way when necessary is a skill that's harder (as I understand it) for those on the autism spectrum, but I don't think that makes every application equivalent to masking.

  • jasonsb 2 days ago

    > A lot of the behaviors this seems to force I don't understand - like railroading whether to skip breakfast or not. I am well aware that for kids with autism frequently there are feeding issues, but what's going on in the "simulation" is very not clear to me.

    I lost interest after the breakfast question. For someone who’s physically fit (which this person likely is) skipping breakfast shouldn’t cause a noticeable drop in energy. If it does, then there may be more going on than just autism.

    • tpoacher a day ago

      Everyone's different.

      I lose energy if I do have breakfast. Which results in lack of focus. Therefore I often postpone my breakfast as long as I possibly can, otherwise, with a large probability, my work day is ruined before it even starts.

      • thelittleone a day ago

        Agree, breakfast slows me down, so I rarely eat it anymore and typically eat around midday to 1pm after morning work and exercise. I've fasted only once, it lasted 12 days and my energy level was almost overwhelming and electric. Boxing, running, etc. I gave up trying to understand why. And although it was an amazing experience, have not fasted again in the 5 years since.

      • movpasd a day ago

        For myself, I have low energy if I don't eat breakfast, but there is essentially no hunger signal for me in the morning. Over time I've settled on eating the plainest breakfast I can.

        I think this has a lot to do with the 9–5 and my natural sleep cycle being delayed compared to that.

      • escapedmoose a day ago

        Same. If I have breakfast it seems to kickstart my metabolism or something idk. The result is, if I have breakfast, I’m distracted by hunger all morning. If I skip breakfast I can focus all morning and I don’t get hungry until lunchtime. Bodies are weird.

    • serf 2 days ago

      you also don't fall asleep at your desk as a response to a birthday party in the office early in the morning after a good nights' sleep, but if you play a one-sided game in this that's what happens.

      it's not a reality simulator, incredibly few video games are.

      the whole thing seems like a conflicted struggle between "I want to make a game" and "I need to get my points across", often to the detriment of the game-part.

      It's an interesting concept though.

      • failrate 2 days ago

        My lived experience is that high stress situations frequently make me feel like just going to sleep.

      • curtisblaine 2 days ago

        > It's an interesting concept though

        Why? It's a multiple choice game with different outcomes. Hardly groundbreaking.

    • recursive 2 days ago

      I don't even have an autism diagnosis, and I never skip breakfast because of the energy drop. I bike to work, run 5ks, and am not overweight, even by standardized BMI metrics.

      I don't even have an autism diagnosis. It never occurred to me that something might be "going on". Breakfast imparts energy. To me, that has been a given.

      • trenchpilgrim 2 days ago

        I can go about a full day before eating without noticing an energy drop. Everyone's different.

      • zmmmmm 2 days ago

        part of the challenge with autism is that nearly all it's features are shared partially or individually by ordinary people as pretty routine character traits (eg: socialising is energy draining for "regular" introverts).

        It's (a) them being collectively combined and (b) the severity that creates the issue, but it's very hard for autistic people to explain and justify what's happening to them when everybody feels like they already experience these things and manage to just "deal" with it.

      • bitbasher 2 days ago

        I haven't ate breakfast in 7+ years and I've never had an energy issue. I've ate OMAD (one meal a day) for over a year while running 5ks Monday to Friday and never had any energy issues either.

      • BrandoElFollito 2 days ago

        Typically, my first meal is at 11:45 (a plate of normal food + fruit), and then one at about 19 (the content varies from bread + cold cuts to soup).

        When this changes in numbers, size or kind I do not feel any difference in energy.

        When I bike to work I am particularly not hungry until 11:45.

    • izzylan a day ago

      You're unfairly extrapolating from your own experience here -- everyone's body has different chemistry.

      I have to eat breakfast in the morning in order to feel energetic during the day. But specifically, I need a high-protein, high-fiber breakfast. Anything else makes me feel lethargic and tired.

    • phito a day ago

      Unless autism gives you an eating disorder, making it so you have absolutely no energy reserves cough cough

    • robertpateii a day ago

      Being physically fit past your 30s is a series of building habits and making hard choices that obviously is a challenge of its own that many in sedentary jobs have skipped or fallen away from. OP may be fit, but yeah for average office worker (especially in locations that are car-bound on long commutes) I’d bet there is indeed more going on than just autism.

    • [removed] 2 days ago
      [deleted]
    • andreareina 2 days ago

      I'm a mid-packer in the triathlons I participate in, so pretty fit. I definitely notice the energy difference between having eaten breakfast or not, in the everyday (non-training) context. It's not a hunger thing (I'd miss breakfast most days if I didn't literally schedule it) and I can do my strength training and short intervals to the same performance fasted as fed. But I am aware of it.

    • a1o 2 days ago

      If I don’t eat breakfast I feel afraid I will lose any gym gains and feel very weak. I don’t know anyone that hits the gym daily and skips breakfast.

      • yoz-y 9 hours ago

        Since the anabolic window is a lie and you have roughly 72 hours to feed yourself protein after effort you can skip breakfast without any impact if you don’t feel hungry. I don’t think many nocturnal people who wake up regularly at 10:00 really eat breakfast if lunch is 2 hours away, regardless of gym habits.

    • spoiler 2 days ago

      It's complicated for me. Sometimes breakfast makes me notice my digestive system, which seems to make my ADHD-adjacent traits worse. I also get IBS... Which is different from the meds constipation. So eating is difficult. Because of IBS my bowels are also unpredictable, so dosing laxatives is hard. I don't know how many of these things are caused by meds.

      Then there's the energy thing. I guess if I'm in ketosis it's fine, but after not eating for a whole day it's hard to sustain the next day, but eating isn't alway worth it.

      The saddest part is that junk foot and Tesco meal deal is so is somehow easier to digest. So I often eat that.

      I'm trying Kefir (even though I'm lactose intolerant, but I take lactase with it) for the 10 time probably. My GP recommended it. Alas, maybe it helps.

      Soooo, tldr eating yes, I love it, but it can have consequences that completely tank my productivity. And each time I have to ponder this it feels like I've done a chore but without the reward feeling of completing a chore, even though I just say there in silence for 5-15 minutes

      Idk if other people are in a similar boat

    • snemvalts a day ago

      i would interpret physical fitness as cardio exercise routine and depleted muscle glycogen stores: so breakfast is very welcome and without it is not possible to keep up exercise routine

    • watwut a day ago

      > For someone who’s physically fit (which this person likely is) skipping breakfast shouldn’t cause a noticeable drop in energy.

      It definitely does.

    • 12345hn6789 2 days ago

      You don't feel it immediately. Notice the bar doesn't reset the next day. You don't feel breakfast immediately but your workout later in the day and tomorrow will be affected by this.

    • devmor a day ago

      Skipping breakfast absolutely causes a noticeable drop in energy for most people. Especially if you work an intellectually demanding job. That blood glucose is important.

      Also of note given the OP’s subject, several studies show that people with significantly impactful Autism spectrum disorders have higher brain glucose consumption than the baseline.

      • CaveTech a day ago

        [citation needed]

        • devmor a day ago

          In regards to energy levels: 10.3945/an.115.010231

          In regards to autism: 10.1001/archpsyc.1985.01790280026003

  • tcdent 2 days ago

    You have definitively diagnosed yourself as not being on the spectrum.

    Hard to describe, but there is a tendency to self-sabotage (for lack of a better term) that you have to take into account. Sure, it may be my car, and I may have control of the radio, but I don't always act upon the need to adjust my environment.

    This is correlated with the amount of energy and attention you have to give to processing your environment, much like the health bars in the game UI.

    • jancsika 2 days ago

      > Sure, it may be my car, and I may have control of the radio, but I don't always act upon the need to adjust my environment.

      But in the context of the beginning of a game, people without autism are probably confused. Why isn't the car's environment already tuned to the character's exact specifications?

      I get some of the potential reasons why after playing the game for a bit. But I still would have liked to see a callback to this. E.g., if I drive to lunch with coworkers I could choose to mask by letting the passenger tune the radio. Then the next morning I get a painful sound when I turn on the car. Ah, I get it now! That seems like more satisfying gameplay-- maybe the game already does it and I died too early to see!

      • tcdent 2 days ago

        We're definitely reading too far into this, but the game does incorporate this concept, so I'll make the case.

        You don't get to choose every option every day. Some days you're on, and you make (almost) all of the right choices for your wellbeing. But not every day is like that.

      • bongodongobob 2 days ago

        Optimized and tuned for what?

        Try tuning your entire environment and then maintaining it all the time. Best I can do is get it into a failure mode that isn't a disaster.

        Mapping anything into a perfect system fails. So I'm surrounded by half working shit that works well enough that the energy from the shittyness that it sucks from me is made up by the fact that it's good enough to not crash out over. But I will still stress. Because I do want to fix the Bluetooth but I also have 8000 other things at home to perfectly tune as well.

        My shoes are a year and a half old. A little stained, a little green from mowing the lawn. I sure as fuck don't want to go to a shoe store and tell the poor young worker there that I don't need their help. I'm not buying shoes without trying them on, so internet is out. When the soles fall off and the social impact is great enough, I'll replace them.

        I haven't cut my hair in a year and a half because the hair dresser lady that I went to for 15 years moved away. Staring into a mirror while someone talks to me and cuts my hair is a fucking nightmare. I know this makes me look unconventional, but worth it for now. I have to carefully wash, condition, dry, and brush my hair. It's more work. But it's optimized.

    • PaulHoule 2 days ago

      What if you're like gay and always struggling to stay in the closet?

      • jancsika 2 days ago

        Did you play the game? If I'm understanding it correctly (a big if), every single time the author is forced to leave out edge cases when talking to management it is a form of masking. They have to suppress their natural urge[1] to list the edge cases, and come up with a more appropriate message based on a non-intuitive guess about the salient points their interlocutor wants to know.

        That implies active work to mask that is almost certainly measured in hours per day, across nearly every domain of communication and human interaction.

        How many hours a day does the average employee spend talking to coworkers about their sexual preference?

        Edit:

        1: An urge probably backed up by a good faith, well-reasoned, ethical understanding of the literal words that the manager spoke to them!

      • MrDarcy 2 days ago

        Then you’re like a closeted gay autistic person. Speaking for a friend.

  • bbwbsb 2 days ago

    Of course you don't get it: you're not autistic. Did you expect to get it?

    There's what's that quote about good art disturbing the comfortable and comforting the disturbed.

    Eating is very stressful for many autistic people because of trauma and lack of (non-enmeshing) support in childhood. They don't learn how to make a comfortable environment for themselves or that it is even possible. Every meal becomes stressful. Force feeding or depending completely on others.

    Masking goes so deep, it's just not possible to easily convey with words, because after a lifetime of masking you don't even notice all the things that you do that count.

    "Presenting behavior in a socialized way when necessary" has a hidden part. Presenting what behavior? To whom? Presenting autism-coded behavior around autistic people is stress-free.

    • Cthulhu_ a day ago

      I think masking is easily conveyed with words because everybody does it - other terms used are "code switching" where you talk differently to friends, family, parents, bosses, subordinates or children; "emotional labor", a phrase often used for service industry people (think receptionists) where people pretend to be in one emotional state (happy and cheerful) for the sake of their job or role while they really aren't. This is even worse / more obvious in the US where a lot of people can / do switch their personality on a whim, e.g. when picking up the phone.

      What's different is that for neurotypical people they don't seem to be aware of it and it comes naturally, but for ND it's learned behaviour that costs energy and conscious effort to do. And they feel like they have to do it because society is used to people effortlessly doing it all the time, so if you don't you're considered off, or simply don't get to participate in society because you're weird/boring/scary. The latter is the worst, you're just yourself but people get uncomfortable around you. They won't tell you why nor just accept you (which is understandable, biological defense mechanisms etc), but you do become an outcast. Unless you play the social games.

      > Presenting autism-coded behavior around autistic people is stress-free.

      Anecdotal, but... not necessarily, any one person's behaviours can affect someone else negatively.

      • Scarblac a day ago

        > but for ND it's learned behaviour that costs energy and conscious effort to do. And they feel like they have to do it because society is used to people effortlessly doing it all the time, so if you don't you're considered off, or simply don't get to participate in society because you're weird/boring/scary.

        And of course, every now and then you fail to do it right and people think you were acting really weird but won't explain why.

      • thyristan a day ago

        I'd like to elaborate a little more on why "autistic masking" is different from "neurotypicals' masking".

        For neurotypicals, masking is to exhibit behaviors that you subconciously know how to do because they are part of your natural range of behaviors. When a neurotypical is masking being friendly and happy in a social occasion (when they actually don't feel like it), they draw on their previous experience of having been friendly and happy in another social occasion. They know what it feels like, they know how to behave instinctively whey they really are happy and friendly, and faking it is only the effort of drawing from prior experience. For actors, this is called "the Method".

        For autists, masking is emulating behaviors they wouldn't normally exhibit on any such occasion. They don't know how to do it, not subconciously, not instinctively. So they explicitly have to observe others, emulate their behavior on that occasion. That leads to two kinds of problems: First, they need to have observed this behavior, learned and practiced it, and need to know how to reproduce it correctly. Second, they need to recognize the occasion correctly, and not misinterpret their surroundings, the feelings and moods of others. And since autists also do have problems even interpreting their own emotional state (they do have emotions, but no intuitive way to know what they are at the moment) and even more the emotional state of others, the effort is far higher. Imagine an actor who is asked to play a totally alien role without any frame of reference and without prior experience, no do-overs and all the other people around him are also directors and constantly judging his performance and measuring it against their effortless instinct what it should look like.

    • aDyslecticCrow a day ago

      I can buy your arguments, but not in the context of this game.

      Saying "I'm tired I'll go work more silently" is just reasonably workplace behavior. Telling your coworker "can we sit down and talk about this somewhere more quiet" is just reasonable thing to say to improve productivity. Saying "This meeting is a bit unstructured and i feel if would be more productive to write out an agenda" is not breaking a mask or being an ass, it's focusing on getting shit done for everyone. Sending an email about concerns about unclear and un-mensurable performance in a post-meeting summary is productive and useful for the team (and less socially draining than doing it during the meeting).

      All humans mask. Autistic people are simply more prone to "over-mask" or mask things others don't. But a-lot of masking behaviors are mal-adaoptions from childhood. A distraction-less focused and structured work environment helps everyone, so be the ass and enforce it. And particularly engineering fields have a higher tendency to attract (certain) autistic traits, which just further makes speaking out even more valuable for everyone involved.

      Simply put; The game makes being "breaking the mask" a negative thing, and a failure case for the game. But all options that break the mask seem to improve energy and social connection. (which goes entirely against the supposed benefit or purpose of masking)

      • notahacker a day ago

        > Saying "This meeting is a bit unstructured and i feel if would be more productive to write out an agenda" is not breaking a mask or being an ass, it's focusing on getting shit done for everyone.

        But in many cases, it will absolutely be interpreted as being an ass, and autistic people are less adept at spotting those contexts and communicating in ways which don't look like they're being an ass (also, autistic people are probably more likely to be irritated by the agenda of the rest of the meeting or next meeting being to discuss agendas...)

        I agree with your wider point that everyone masks to some degree, but its obviously less consequential to non-junior neurotypical people in familiar environments who can reasonably accurately predict how everyone will react to them choosing to take the mask off and hint what they really think about the meeting. Sure, a lot of other stuff like requesting to talk in a quieter environment is usually something straightforward any reasonable person will accommodate, but it's not surprising people concerned that making too many requests perceived as "weird" might harm their career and not really sure what's "weird" or not default to just trying to avoid them.

        • aDyslecticCrow a day ago

          Being unable to read or intepret the reaction or social cues given as a response to such blunt remarks is indeed a core issue. I think this is a core reason autistic people over-mask.

          Beyond simply masking autistic traits, some people mask to the point of changing personalities or interests. Masking to be more "normal" than any "normal" person.

          Knowing when and when not to raise or point out issues or concerns can be quite complex.

          So in practice, its quite difficult to find the balance. But take issue with the "inevitability" present in a lot the explanations of autistic masking.

          Googling "making workplace autism friendly" gives ... detailed descriptions of very nice workplaces. Particularly the examples in this game are things every workplace would benefit from adjusting even for "neuortypical" workers. (And if not pointed out, it will just continue to drain energy the future)

    • alex77456 2 days ago

      I am, and ironically it prevented me from being able to enjoy this; too many inaccuracies and absolutist perspective frustrated me.

      Like others said, skipping breakfast should not be that big of a deal for a reasonably healthy adult, we didn't evolve having 3 meals a day. Intermittent fasting is a thing too.

      'Masking' parameter misses the point in my opinion. Picking what I would personally realistically do (having adapted over the years) causes it to drop to 0 over a few days. Picking what i think author wants me to pick, same result. Yet somehow I managed not to get fired in 3 days irl.

      I get it, it's an illustration of 'autism is hard' for 'normies'. But it was painfully close to being realistic/enjoyable too.

      Not to say it's not useful, ADHD popups were 10/10, general vibe was spot on, will probably forward it to a few friends; it's just not nuanced enough to not annoy me personally.

      One of rare times where I can be blunt honest and hopefully not come across arrogant.

      • tpmoney a day ago

        > Like others said, skipping breakfast should not be that big of a deal for a reasonably healthy adult, we didn't evolve having 3 meals a day. Intermittent fasting is a thing too.

        I haven’t played the simulator but I wonder if it’s also trying to account for more than just the physiological effects. A friend of mine has autism, and we were getting together one day. On the way over I suggested getting some food since it was close to dinner time. They agreed, gave me some items and I bought us some food. When I arrived they were amped up and excited to show me something. I set the food down, and I ate while they were showing me this thing that had them all excited. They ate some of the food too, but were clearly distracted and not all that hungry. No big deal. But a few hours later I noticed they’d gone real quiet and seemed down or anxious about something. Turned out they had been worrying for the last hour that they had offended me because they didn’t eat all the food and they knew they weren’t going to eat all the food because they were going through a phase where eating in general was just a difficult thing to want to do and so were eating just the minimums they needed to not have other problems.

        The entire later half of their evening and their excitement over their new thing had been badly deflated all because of a decision / need to not eat all the food on offer. Never mind that this was nothing new for them. Never mind that I could easily see myself skipping food just for the excitement they were experiencing before factoring in any sensory phases. Never mind that it would be a truly shit thing for me to be offended because they only ate some of the greasy fast food I picked up for us. No this simple and normal act caused them an hour of stress and anxiety over worrying if they’d crossed some social line for doing something I didn’t even notice until they said something.

        But it doesn’t matter whether I noticed. Their brain latched onto the “you did something abnormal, people might have noticed, now you need to analyze everything that’s happened to figure out what you next move should be” train of thought and it would not let go. So at least from what I’ve seen, choosing to eat or not can have impacts beyond just “hungry”

    • albedoa a day ago

      > Of course you don't get it: you're not autistic. Did you expect to get it?

      Am I missing where the person you are replying to identified as non-autistic?

  • s777 2 days ago

    > like railroading whether to skip breakfast or not.

    I can relate to this in that I barely have any energy in the mornings to do anything no matter how early I set my alarm, then end up skipping everything except the bare minimum to function, or maybe less depending on if I happen to have more energy that day.

    • timcobb 2 days ago

      Is there a connection to autism there?

      • PaulHoule 2 days ago

        Autism has become a culturally dominant force that's displaced other kinds of neurodiversity almost completely. All kinds of people have to "mask" aspects of themselves to get along. Black people have to talk white, Asian people have to present themselves in a way white people think is assertive. Gay people have to stay closeted. Just try academia when you grew up in a working class family.

        The "simulator" paradigm pretends to promote empathy but it actually does the opposite.

      • s777 2 days ago

        Not sure, it's just my experience and I was diagnosed autistic at an early age

      • pinkmuffinere 2 days ago

        Ya, I'm curious about this as well. I'm not a morning person, and certainly am always just-scraping-by until about 1 pm. But is this some mild autism? Or is this just how I am? Or is there even a sensible distinction between those two phrases?

    • anthomtb 2 days ago

      I feel like setting your alarm earlier, thus reducing the amount of sleep you are getting, may be the wrong thing to do.

      • Cthulhu_ a day ago

        Yup, getting up earlier only works if you go to sleep earlier, too. But that's not for everyone, some people are just night owls.

  • blablabla123 21 hours ago

    Autism with adults is rarely presented and very individual anyway. I like to see such issues like some wound. Sure you can continue your daily chores. But if you accidentally rub against it, it gets worse and worse. Eventually you need to make a longer break so it doesn't get infected like crazy.

    The whole masking thing isn't about skill. (Like in the intro, the guy is in fact even outgoing at times...) It's rather that you need to run behavior with software instead of hardware acceleration. Possible but it sucks.

    That being said, the whole thing with falling asleep at the desk is a tough manifestation. For me it's less drastic but gets me into problems in the long run.

  • robertpateii a day ago

    Having to select self care and breakfast every morning (and meds on some routes) is a good reminder for me of the importance of those things in the long run of a whole day. I don’t think I’m any farther on the spectrum than the average software developer, but it’s still a daily decision to be made. (Of course for those people with different breakfast patterns - you still have a best approach for yourself that you must decide to follow every morning.)

    Similarly for the masking meter, I don’t know what it feels like exactly to have mask. However isn’t it hard, in varying degrees, to constantly determine and go through with the right forward-looking choice in real life? My guess is what’s a challenge for some is also a heavy toll on others.

    Habits help with much of the daily decisions, but are of course their own challenge to implement and maintain.

  • nedt a day ago

    I guess the personal vehicle is fine as long as you don't drive in traffic. Maybe you try cycling on your typical route to work to be more immersed in the traffic and all the stress it causes.

  • SwtCyber a day ago

    It's trying to give a feel, not a textbook definition

  • anaisbetts a day ago

    > Maybe I'm missing the takeaway from the driving decisions.

    I think the point is that for autistic people, a lot of things in their day-to-day life that randomly happen and can't be controlled for, can be the equivalent of just, random people walking by and punching you in the arm all day.

    Each individual punch might not hurt, and describing the incident to a neurotypical person is probably met with "Eh, that doesn't sound that bad". An entire day's worth leaves you with a pretty sore arm though.

  • derefr 2 days ago

    > like railroading whether to skip breakfast or not.

    If you're talking about what happens after the first day, I think it's not due to any of the "stats" but rather because your first day is long and so you're running late on the second day, and for whatever reason you have nothing ready-to-eat at home. (Might be related to that option to go to the grocery store that you probably didn't take.)

    In other words, it's seemingly a narrative-driven obstacle.

    > it appears to be a personal vehicle, surely you, as the owner, can make the interior environment something that's as close to personally comfortable as possible? Maybe I'm missing the takeaway from the driving decisions.

    Could be a rental car. Though my guess here is that the author actually comes from a place where the combination of culture and socioeconomics means they commute via public transit; and so they're actually trying to translate their experiences of the social impingement of public transit into analogous experiences when driving.

    (Personally, I think a better translation would be being stuck in gridlock, or getting on a highway via an onramp where you keep getting cut off, etc, where there's an autistic itch there to get the other human drivers to realize that, when driving, they should "realize they're all cogs in a global optimization problem and so drive as predictably as possible, in order to decrease burstiness and so increase throughput, even at the expense of their individual perceived end-to-end latency.")

    > Related, what is or isn't masking seems very confused. To begin with, it's not just code for "hiding or not hiding behaviors that appear socially irregular." But it's also not the case that deciding whether to participate in a non-working-hours event is or isn't masking in of itself.

    AFAICT the "masking" gauge seems to be some rolled-up combination of 1. an odd domain-specific form willpower ("spoons" but you can only spend them on masking-related tasks, and when depleted you can't mask even if you still have motivation to do other things), with 2. a measure how close others are to deducing from your behavior that you are in fact on the autistic spectrum. (As if that's something you could ever expect to keep your coworkers and boss from realizing about you over years of continuous interaction.)

    I say this because of the interaction I encountered about coming to a charity event, where literally being explicit about how you have a problem dealing with that kind of social situation... decreases the "masking" gauge. If it was purely #1, I'd expect the gauge to go up. It's only under interpretation #2 where it would go down.

    (Or maybe you could describe the "masking" gauge in classical D&D terms as a WIS stat where masking attempts are Will-based saving throws?)

    Honestly, I'd like to just see the source code for this. I'm surprised it's not linked; I feel like reading the source (hopefully with a lot of code comments about why the given heuristics were chosen) is the obvious "next step" to the game communicating what it wants to communicate.

theasisa a day ago

I am AuDHD and this is 80% my experience. I saw this post in the morning pondering if I call in sick or work because of insomnia and being unable to have the energy.

I commute to work by train and even though I have great headphones and listen to music on Spotify some mornings it just crackles in my ears. The audio is fine, but I'm extra sensitive sometimes.

At the office people are sometimes very loud. They are excited and having fun but when it goes over my sensory limit (which varies a lot) I become unable to do anything. Ears crackling with headphones means I can't shut their noise out either. And we're supposed to be social at the office but they talk about stuff I don't know what to say about.

When I get home I am beyond exhausted. Can't sleep because of anxiety or adrenaline or something. I just zombie out streaming series or movies while reading Hacker News, Reddit or Bluesky. I promise myself I'll go to sleep early but if I do I can't fall asleep until 2-4am. If I stay up until 1am I have better chance of falling asleep faster.

Weekends are spent catching up with sleep, wanting to tidy up and do side projects as well as gaming but most times I spend half the day in bed and then stay up gaming or something because it is my time and I want to do the fun stuff. Rince and repeat unless I get lucky and catch 10 to 12 hours of sleep.

I'm a 47 year old female principal engineer. I feel like I'm just drifting through the days and months. But I do live my work, the people and challenges. I just wish I could deal with everything better.

Thanks for making this game.

  • Balgair a day ago

    I know you're not asking for it, but as someone that has a really hard time with anxiety and sleep: quit caffeine and exercise more.

    The quitting caffeine is tough. It's 3 days of really bad headaches that no pain killer will touch, because those painkillers act on a different biochemistry. But, after I did that, my anxiety went way down and I was able to sleep a lot better.

    Exercise is a bit harder, as it's a schedule problem. Even just a little bit will help though and increase the sleep 'pressure' or so I have found with myself.

    Again, not trying to be a jerk here, just trying to help out however I can. My bad if this is not the place.

    Best of luck in the struggle!

    • kevinmchugh a day ago

      I quit caffeine with no withdrawal symptoms by reducing my intake by 10% every day for 10 days. I weighed how much iced tea I drank on day 0, then had 90% of that on day 1. The last day was just a shot glass full.

      I probably picked the idea up here, but don't know from whom so I thought I ought to continue sharing it

    • em-bee a day ago

      easiest way to exercise is to take a walk. add it to your commute. on the way home, make a detour.

      • freehorse a day ago

        I love walking, but the lack of time is the biggest issue. The only advantage of higher intensity exercise I see is that you do not need to do it as long. I could walk for hours every day otherwise.

      • archerx a day ago

        My personal favorite is take the stairs and double step it so you skip every other step. After a few months you'll have rock hard thighs and calves.

    • archerx a day ago

      >3 days of really bad headaches

      I never got this, my mom would complain about this when she was out of coffee when I was younger but I have never gotten caffeine withdrawals and I have had periods of time when I consumed a lot! My last two jobs offered free coffee so I drank a lot and when I stopped working I stopped drinking coffee cold turkey because I don't have a coffee maker at home nor want to go out just to get to a coffee and no headaches.

      I also drink a lot of energy drinks when I'm working on personal projects, more than the recommended amount per day and I feel like those have less negative effects than coffee, coffee gives me cold sweats for some reason. The energy drinks give me insomnia but I think it has more to do with the other ingredients than the actual caffeine.

      I have quit various forms of caffeinated drinks cold turkey many times and never got a headache, but it is a little harder to get the day started the first few days after stopping because I just feel a little sluggish.

    • krageon a day ago

      > quit caffeine and exercise more

      With respect, you weren't asked and it's shit advice besides. I'm happy you have something that works but you may rest absolutely assured anyone with these issues that is a day over 20 has heard this "advice" hundreds, if not thousands of times.

      At this point the bad advice (yes it's bad, it doesn't work) is almost as alienating as the fact that nobody seems to understand.

      • philipallstar a day ago

        > With respect, you weren't asked

        With respect, you weren't asked.

      • toomanyrichies a day ago

        > With respect

        > it's shit advice

        Those two statements seem to contradict each other.

        • krageon 8 hours ago

          I can respect you but not respect one of your actions. You say "with respect" to mean "this isn't a commentary on what you are as a person, but on what you did specifically". Given that context, I don't agree with you.

      • tstrimple a day ago

        Indeed. As someone who deals with the exact same issues as the original comment and have been fighting with sleep issues for over a decade, it's pretty fucking insulting to think we haven't tried to vary caffeine intake. Apparently we're too fucking stupid to think that the drug most known for wakefulness might be what is keeping us awake! It's like when I talk about crippling executive disfunction they chime in with the ever helpful, "have you tried setting a five minute timer to get started?"

        I can guarantee that folks who suffer from these symptoms have read far more about mitigation than the average drive by commenter who doesn't suffer from them. Our whole lives at some point becomes about mitigation. So the "just drink less caffeine" is stupid and insulting and unfortunately way too common.

        • freehorse a day ago

          It is a public forum, people say all kinds of stuff. The commenter did not try to insult anybody, and they were trying to be polite and share how that worked for them. If you think their comment has no value to you, ignore it and move on. Hopefully you find other comments more stimulating/interesting (or not). Maybe some people find some value in that comment themselves. Not all people here are in their 40s with decades long insomnia issues.

  • austin-cheney a day ago

    Why spend the energy masking in the first place?

    I have a child with AuDHD who has trouble masking consistently. That coupled with impulse control issues and an inability to regulate between the two just looks like chronic deception, lying for the sake of lying. It is exhausting for him and it never works in his favor. We spend a lot of effort coaching him to not mask and to not seek unearned attention, and its a huge challenge.

    • jabroni_salad a day ago

      There is a death by a thousand papercuts situation with being disabled where you will have to explain yourself dozens of times a day and you get stuck with having only one conversation subject with any given stranger you meet.

      For some people, masking is just an easier, freer form of existence. It's like asking for a dressed up coke at a happy hour so your coworkers wont grill you about abstaining from alcohol. Or how people who work in callcenters seem to converge on a way of speaking that makes the interactions a little easier.

      It's just that for autistic individuals, they are highly analytical about how everyday social interactions work and doing this costs them more cognitive load than you would expect.

      • austin-cheney a day ago

        I completely understand why people do it. My point is to pick your battles well. There are many cases where masking brings far greater pain than return on investment. When masking does fail people see right through it AND the thing you were attempting to hide is now exposed in great glorious fashion when like a Striesand Effect.

    • intenex a day ago

      Masking is a learned behavior - learned specifically because the person in question had sufficiently unpleasant experiences being unmasked that they decided they needed to try hard to mask in order to avoid said unpleasant experience.

      No one masks at birth. If you want your child to stop masking, perhaps it’s helpful to investigate what caused them to learn the behavior in the first place and what could be done to make the experience of being unmasked more pleasant and less aversive for him.

      Just as you say, masking takes an incredible amount of energy and is exhausting and often backfires. Why would anyone expend such exhausting amounts of energy without some extremely strong motivating factor? The alternative to not masking must be perceived as exquisitely undesirable.

      • mbrumlow a day ago

        I think people think masking is just for those who have Autism. I think at some level all people mask. Most people behave differently outside of work or in public places when they are alone or with close friends.

        I think with Autism the process of masking is just harder, and the ability to read social queues takes extreme focus to understand the general emotional state of others around them.

    • pavel_lishin a day ago

      > Why spend the energy masking in the first place?

      Because of things like this:

      Coworker: "How are you doing?"

      Me: "Bad."

      The conversation, and the rest of my day, does not significantly improve from there.

      • austin-cheney a day ago

        Does that example really require masking? Absolute not. You don't have to lie when you provide a neutral response. Examples: "Busy day", "Just feeling tired", "Many things to get done.". Those are not necessarily good or bad and suggest you aren't making small talk.

        Or, if you provide a never ending story they will see your disability for what it is and they won't ask you a second time.

      • stronglikedan a day ago

        I'd say that's not masking, since literally everyone does it. As a famous comedian that I can't quite place right now once said, (paraphrasing) "the only valid answers to "how are you doing?" are good, fine, or okay.

      • freehorse a day ago

        Honestly, some things like this are solved with learning certain skills, practicing them a bit, and then it becoming easier. Answering to "How are you doing?" does not require masking, people asking it in casual contexts usually do not expect any kind of "honest answer". It is as hard as answering "hi" to "hi". There are plenty neutral answers that neither require you to smile and play it happy, not invite some long, awkward conversation. It could also depend on where you live though, of course.

  • joshcsimmons a day ago

    Thank you so much for writing this. I have a feeling there's way more of us that we realize.

    I have lived very similar to what you're describing during a few periods in my career.

    > it goes over my sensory limit (which varies a lot)

    This line hit home. Some days I feel randomly very "thin" for no apparent reason.

    > When I get home I am beyond exhausted. Can't sleep because of anxiety or adrenaline or something.

    This is the worst and it doesn't make any sense so nobody understands when you explain it to them. With anything else autism related ymmv but CBT-I is the best tool I found for this. It didn't totally unfuck my sleep but it at least made it a tenable balance.

    I didn't really have a point in writing this I just found your story touching and my heart goes out to you.

    I'd love to interview you (anonymously or by name) for my blog if you'd be open to that. You can contact me at d+rjoshcs+immons@+gm+ail+.com (remove the + signs, my crappy attempt at bot-defeat)

  • ljm a day ago

    On overstimulation: there is something about office conversations that I find overwhelming now, and it's that, since COVID, people seem to have lost their inside voices and are talking at volumes that seem quite a bit louder than usual.

    Because of this the 'pub conversation' effect comes into play, where multiple conversations take place in the same room and the different groups compete on volume in order to remain heard.

    I pretty much shut down at that point, especially if someone is also trying to talk to me at the same time. I can't stand it just the same as I can't stand it in a loud pub.

    Never use to happen before 2020. Or it did and I wasn't nearly as sensitive to it as I am now.

    In fact, it happens when people are on their phones in otherwise silent places too. If I can hear you with almost perfect clarity when you should otherwise be out of earshot, then it is too loud.

  • broguinn a day ago

    I don't know if this is useful for you, but getting my MTHFR and COMT genes sequenced has been incredibly helpful for managing my own mental health. Since getting these results, I've been able to understand my own neurology better.

    I'm sorry to hear about your issues with sleep - and can relate to them. In particular, my slow COMT means that my baseline cortisol is higher than most. Taking phosphatidyl serine before bed helps me a lot, and lets me sleep through the night.

    Best of luck.

    • [removed] a day ago
      [deleted]
  • stronglikedan a day ago

    Everything after (and including) "When I get home I am beyond exhausted" is me. Although, I don't think I'm on a spectrum. Could that just be the insomnia, independently?

    • freehorse a day ago

      Insomnia def makes it worse, but I still have it in periods I sleep pretty well. I did not have it in the past, at least to that extent. Not sure if it is an aging thing, a medical condition, or just having to do too much work and deal with too many people there, together with difficulties to put boundaries.

  • SwtCyber a day ago

    The part about the headphones crackling even when the sound is technically fine really resonated; it's such a vivid way to describe sensory overwhelm that most people might never even think about

  • pixl97 a day ago

    Anti-anxiety medication can help, there are plenty of people online that will tell you it's terrible or does nothing, but think about talking to your doctor about it.

  • instakill a day ago

    are you me? are we definitely autistic together? should I go see a shrink?

  • fragmede a day ago

    Get heavy duty ear protection from home Depot like they wear on construction sites to protect workers from the noise of heavy machinery, and wear airpods/in-ear wireless headphones under them. ymmv, but they saved me.

    • aleph_minus_one a day ago

      Or get some good noise-cancelling headphones.

      • iamjkt a day ago

        Good in theory, but for me when I’m at my sensory limit I can’t have anything in my ears, nor the pressure of anything over them.

        It’s a no-win situation in that respect and it sucks.

        • kridsdale1 a day ago

          I can’t have anything in them either. Too sensitive in the skin.

          But I can have things OVER them. So AirPods Max or the Sony cancelling big headphones. No earbuds.

  • klohto a day ago

    based on my experience im going to assume you don’t keep the strict 8 hours maximum and also work at home. you need more boundaries, that helped me a bit

    • theoreticalmal a day ago

      Where are they commuting to by train and how did her loud colleagues get into her home?

latexr 2 days ago

> To keep your job and avoid conflict, you must "mask." Masking means hiding your natural habits and feelings, while imitating the social behaviors that coworkers expect.

Why do both eating a proper breakfast and skipping breakfast affect your masking negatively? No one is around, what difference does it make?

  • zmmmmm 2 days ago

    This is a really interesting aspect of masking. The thing is, it's often not the direct presence of external scrutiny that drives the feeling of needing to mask, it's a lifetime of having normal behaviour expectations reinforced to a point where they truly internalised that there's something wrong with not doing the "normal" thing. So they will even be masking in private and have to go to great lengths to even discover where they are doing that and proactively "undoing" their private masking in order to allow them to restore energy during their own private time.

    All this is often referred to under the notion of "internalised ableism".

    • jonnycomputer 2 days ago

      Okay, but isn't this just what all people do? Everyone has a lifetime of normal behavior expectations reinforced to a point where they are truly internalized that there's something wrong with not doing the "normal" thing.

      That's called enculturation.

      I find a lot very confusing about the idea of masking. Everyone masks, even people who are more neurotypical than autists. Getting along with social life means not showing every emotion, it means being uncomfortable, doing things that you personally dislike or find uncomfortable, feigning more comfort in social situations than you actually feel, regulating your behavior to fit in, etc. And then going home to detox and restore your energy with private time.

      I'm not saying that masking is autism is not a thing. But most of what I hear described is just ... normal life for most people ... except perhaps to the degree it is felt or needed.

      • zeroonetwothree 2 days ago

        Most of the challenges of autism are also present in neurotypical just to a lesser degree. No one likes annoying loud sounds but to someone with autism the limit is going to be much lower. No one likes sudden changes but someone with autism won’t be able to handle them as easily. And so on.

      • jeroenhd a day ago

        I'm sure most people mask, but the difference between neurotypical and neurodivergent people is how much they mask, and when.

        For instance, like many people on the spectrum, I feel discomfort making any form of direct eye contact. When I don't have a lot of mental energy, this discomfort can become quite intense, to the point that maintaining normal eye contact takes up so much mental effort that I can't listen to what someone is saying anymore.

        I don't exactly have the "normal" experience to compare with, but I don't believe most people experience that. I've learned the hard way that people don't really appreciate it when you stare at the floor during the entire conversation, so forcing myself to make eye contact has become more automatic over the years, but it adds just a little bit of extra effort on top of what everyone else is feeling.

        Sometimes, it's also other tiny issues. Deviations from how things "should be" can trigger an irrational feeling of upsetting. As a kid I remember crying about a door being painted, or the class using a different set of stairs to the normal route because deep down it felt extremely wrong. Even in my teens, having fries on a Tuesday was something I sometimes needed to recover from. I've learned to dismiss/ignore/crop up those irrational feelings, but sometimes they can sneak up on you and become quite taxing. The worst part, in my opinion, is how the mental impact remains despite knowing how absolutely bonkers those feelings are.

        I believe I'm not affected as strongly by my autism as some other unfortunate souls are, because people seem somewhat surprised when they learn about stuff like that. I can only imagine how stressful their daily lives must be.

      • dns_snek a day ago

        > normal life for most people ... except perhaps to the degree it is felt or needed

        Well, yes, precisely. Almost everyone can relate to experiencing mild or moderate back pain for a couple of days when they sleep in a weird position, but some people have chronic back pain that makes life unbearable without prescription pain killers.

        While talking to people about my ADHD in real life I noticed that many of them speak like they understand ADHD. Even when I try to explain in more detail they come really close to "getting it" by superficially relating to some of the ADHD symptoms, but unfortunately almost all of them end up taking the logical leap to say that "everyone deals with this" and start recommending "solutions".

        Most people will never understand ADHD just like I don't truly understand what life is like for people with chronic pain, and that's fine.

        People seem to at least conceptually understand that chronic pain = pain like they know it + much worse + never-ending, which they recognize as being awful. The thing that bothers me is that when it comes to ADHD (and autism) the calculation suddenly becomes ADHD = concentration problems they experienced + exaggeration + lack of discipline.

        ADHD is relentless, it follows you everywhere, you can take many months off from work for stress relief and it will still be there (I tried). You can make sure to sleep well, eat well, exercise, avoid all stressors, focus on hobbies that make you happy and it'll still be there.

        People juggle sleep deprivation, stressful job and/or kids, socializing, chores, appointments on a daily basis and say that concentration problems are normal, and yes, of course they are if you're overloading yourself like that. But many people with ADHD experience those (and much more) at our baseline and if I tried to achieve half of what other people achieve on a daily basis, I would burn myself out in under a month.

        Some people might read this and think that this I'm an outlier but I think I'm pretty average as far as ADHD severity goes, I managed to finish university before struggling to keep up outside of highly structured environments, and ultimately getting diagnosed with ADHD as an adult.

      • zmmmmm 2 days ago

        it's absolutely what all people do. The missing piece is you need to (a) multiply the severity/effort required by an order of magnitude and (b) add in a whole host of co-occuring factors like anxiety, OCD etc. that often come along for the ride

    • latexr a day ago

      That doesn’t explain why both eating or skipping breakfast affect masking. Everyday, everyone either eats breakfast or they don’t, they can’t both be abnormal.

      • tpmoney a day ago

        They could be if your options are “skip breakfast or eat something insane for breakfast because your brain and body crave it and it’s all you can manage to get yourself to eat if you are gong to eat.”

        Think about how you might react if you were talking with someone about what they had for breakfast today and they answered “a bag of cotton candy and a beer”. That’s really weird right? Like you might be concerned about them for making that choice right? And what if on other days you notice that they’re a bit grumpier or more tired and they admit to not eating breakfast on those days. Now imagine over a few months you come to realize that your co-worker is either always skipping breakfast despite how it affects them, or they’re eating a bag of cotton candy and a beer. You’d probably be really concerned for them. You might even in an attempt to be helpful and supportive try and help them have better breakfasts, maybe even bring in some bagels (even though they always decline). This is an extreme example of course but for some autistic people, they will go through phases were if they eat they can only eat very specific things and those things aren’t going to be “normal”. During that time, the decision to eat or not to eat and the decision for what to eat are extremely fraught things because very well meaning and well intentioned people find the decisions being made odd and feel like they need to “help”. But if you don’t want the help (or worse if you know you should be doing something different but your mind will make you physically ill if you do) all that “help” is really just another stressor on top of everything else.

  • fmbb 2 days ago

    Also, everyone has to mask at work.

    • ants_everywhere 2 days ago

      This is because autistism advocacy groups misuse the word mask. It is supposed to refer to extra work you have to do playing a specific persona. E.g. at a party pretending to be a character from a movie or a book. And especially trying to force yourself to become that persona to fit in.

      A lot of people in the advocacy space use it to mean basic things like being well behaved or being nice to people. Everybody has to be well-behaved at work. Everybody has to consider the feelings of others etc.

      The idea of "wearing a mask" in the sense of being polite is older than the notion of masking in autism. For example, P. G. Wodehouse used it a few times in the 1920s to refer to the social expectations made on aristocratic families. E.g. from 1922:

      > I didn’t like the chap, but we Woosters can wear the mask. I beamed a bit.

      In this sense everyone masks. In fact they mask almost all the time from the time they get up until maybe the time they go to bad. Masking in autism originally referred to something different that was specific to autism.

      The way it's used now it essentially just means "it's harder for me to fit in." Which is true but doesn't tell you anything about autism from a psychological point of view beyond the obvious fact that it's harder for us to fit in.

      • xp84 2 days ago

        > people in the advocacy space use it to mean basic things like being well behaved or being nice to people

        Thank you for this comment. As a family member of a young AuDHD person I am continually battered by a combination of their behavior (which directly and un-ignorably degrades the experience of everyone around) and by various 'advocacy' ideas that use phrasing like that to not-so-subtly imply that it's actually our bad for daring to expect to "not be hit," or to not be forced to constantly base our whole lives on one person's preferences, etc.

        It's tough sometimes to figure out what's real, what's a fair expectation, what's something that can be learned/unlearned, and what's just inevitable.

      • drakonka 2 days ago

        I've mentioned to relevant people a couple of times in the past that I generally feel like I am "acting" in most social situations. Like I have an idea as to who/how I need to be in that moment and act accordingly. I'm used to it and it's not really something very conscious in the moment, but if the event lasts a long time it gets kind of draining since you have parallel tracks going - reading the room, predicting what reaction someone expects at any time, issuing that reaction, etc. It's not that I don't enjoy the events, but I can "fill up" on interaction quickly and want to go home early to recharge.

        I figured that was just being an introvert.

      • jccalhoun 2 days ago

        I'm glad you posted. When I hear masking described like it is in this simulator: "To keep your job and avoid conflict, you must "mask." Masking means hiding your natural habits and feelings, while imitating the social behaviors that coworkers expect.", I always think, "isn't that just life?" If I didn't hide my natural habits I wouldn't be going to work at all. If I didn't hide my feelings I would yell at the person in the office next to me for listening to some webinar through their computer speakers and their door open. If I didn't imitate the social behaviors that coworkers expect I wouldn't wish the person I barely know happy birthday.

      • whatevertrevor 2 days ago

        Yeah I like to think of it as active roleplaying instead of having to put in an effort. Most people have to put in some effort in social situations, heck I catch myself saying unproductive things to my partner if I slip completely into passive mode.

      • [removed] 2 days ago
        [deleted]
    • ActorNightly 2 days ago

      If you feel like this, you may be on the spectrum (not an insult btw).

      Masking for neuro typical people is very easy, even if emotionally draining. My wife is the perfect example - her personality is to be nice to everyone and to connect with people. A lot of times this leads to prolonged conversations with people, which then she complains about, but its basically like saying you are tired after going on a long bike ride - there is some enjoyment in the activity.

      Whereas for neuro-spicy people, masking is the equivalent of spilling seeds on the floor and having to pick up each one with tweezers to put them back. Its both exhausting and not enjoyable.

      • gffrd 2 days ago

        No, parent is right: everybody "masks" at work. Call it putting on a persona, playing a role, whatever - but as you said, it's less effortful for some than others.

      • lxgr 2 days ago

        Everybody has a social battery, but while some are working with a USB PD 240W monster you can't take on an airplane, others have to get by with an iPhone Air (and they can't disable background refresh).

      • Glyptodon 2 days ago

        It's true that different people require different amounts of effort to do and approach it with different tactics, but fundamentally almost nobody streams their inner monologue straight out of their lips, and I think when it does happen is actually much more associated with TBI and inhibition disregulation than ASD. (Which is not to say that it doesn't require a different approach or more effort for those with ASD.)

      • [removed] 2 days ago
        [deleted]
      • idiotsecant 2 days ago

        Yes, it's performing tasks in software that most people perform in hardware.

    • ilikecakeandpie 2 days ago

      Yeah this is a thing that gets me. Everyone has to mask because otherwise there'd be a more conflict over shit that doesn't matter then there likely already is during meetings and stuff.

      Some of the messaging too is just... off-putting/patronizing. "Brave the grocery store"? I know social situations can be tough on people but it's not you're being asked to kill the chicken and process it or grow the veggies. Is resiliency so low that it's a battle to go pick up necessities?

      Maybe I was blessed to grow up in a poor, not exactly stable household at least for a while.

      • gridspy 2 days ago

        It's harder than you think.

        - Go into a bright, commercial space

        - All the packets are "shouting" at you with colorful labels

        - There is noise of shoppers, a PA system, canned music and/or advertising

        - Navigate lots of social interactions with other shoppers around navigating asiles, manouvering carts, who picks what

        - Manage a shopping list and find a variety of goods

        - Go to the check-out asile. Hopefully you can avoid interacting with a human

        - Manage packing bags and paying

        - Hopefully noone talks to you as you leave

      • the_sleaze_ 2 days ago

        Anxiety is not a rational thing, in the same way a friend of the family who had OCD would lambast me about the "particles" my outside shoes and the hems of my pants could bring inside all the while ignoring the giant stack of molding dishes in the sink.

        It's a feeling in the body, a sense of alarm. That sinking pit of adrenaline.

        I don't think I have autism but I do get ptsd type stuff occasionally.

      • asacrowflies a day ago

        You kinda sound like a macho asshole. None of those has anything to do with "toughening up" or growing up in an unstable household. It's like you didn't read the article or any comments here and felt the need to blast your insecurities out into open?

        "Why do people need the wheelchair ramp? Is resiliency so low nowa days? Are people lazy?" Lol

      • gremlinunderway 2 days ago

        Calling this an issue of resiliency is completely missing the point about autism. I recommend you do some more reading because it has nothing to do with resiliency. People on the spectrum can have incredible resiliency in certain activities that neurotypical people couldn't (for example, hyper focus on a very complex cognitive task or dedicate hours of "boring" repetitive practice in a physical activity).

        I think lots of people on the spectrum would gladly grow vegetables or kill chickens over having to go to the grocery store. Tolerance levels on activities placing you in highly social situations with overwhelming stimuli can be significantly lower for people on the spectrum.

    • jlhawn 2 days ago

      Yep... If I didn't mask while at work and home, I'd probably be annoying my family and coworkers with state and local land use politics issues all the time.

    • mootothemax 2 days ago

      Is it that common to upset people at work and have absolutely no clue why or how or what you’ve done?

      And not from a lack of trying, and definitely not because you don’t care?

      Because to me, that’s what masking means: constantly checking yourself because you do care, and you do like people, and the last thing you ever want to do is hurt or upset someone, and yet sometimes you do, and that sucks, and you learn from it, file it away in your mind for next time, and wake up the next day with the same happy-go-lucky optimism you do every day until the world beats it out of you.

  • ActorNightly 2 days ago

    Its a bit of a misnomer.

    Skipping breakfast reduces the caloric energy you have. Eating a full breakfast is basically going against your instinct. Optimal thing for autistic people would be a energy bar that is both healthy, has good texture, and makes you feel full.

    • ASalazarMX 2 days ago

      The game puts the "masking" definition right in the start page, no need to deduce. I also dislike how any form of self care reduces your masking even if you're alone.

      It's designed to make you lose in a couple of days, which would imply you're not a highly functional autist, and hence I wonder how the heck did you get a job without others noticing your autism?

      • ActorNightly 2 days ago

        Like I said, implication is a bit weird.

        For example, self care with video games would be different. I think the author was just trying to demonstrate that self care in the normal sense isn't the same to spectrum folks

    • NicuCalcea a day ago

      I don't enjoy having a full breakfast before work, but I usually still do, otherwise I'd be hungry before lunchtime. It's one of the thousands of little compromises we all make every day, I'm not really sure how this constitutes masking, or I'm not understanding the term correctly.

      • ActorNightly 43 minutes ago

        Basically its forcing yourself to do normal things.

        The idea behind the game is to illustrate that adhering to norms is energy draining, while also letting yourself be yourself results in negative outcomes.

        • NicuCalcea 6 minutes ago

          I don't consider myself autistic, but the simulation seemed to me like the typical experience of a working adult. Most of us force ourselves through routines we need to adhere to but don't enjoy, or even hate. Most of us aren't really ourselves with work colleagues.

          I still don't understand why having breakfast or changing the radio station decreases your masking, though.

    • Cthulhu_ a day ago

      My instinct is to eat breakfast in the morning because if I don't I'm flagging before lunch time and lose energy / concentration / get cranky.

      (of course the other issue there is that I prefer having fixed times in the day to eat)

  • adammarples 2 days ago

    I was surprised to find that skipping my medication which causes drowsiness instantly caused my energy to crash to zero and lose the game. I think this is well intentioned but weirdly designed.

    • freehorse a day ago

      You have to titrate off by halving the dosage, not stop cold turkey. This is common with antidepresant (and other) medication.

  • SwtCyber a day ago

    It's more of a system-level drain than a moment-to-moment judgment

  • [removed] 2 days ago
    [deleted]
  • esseph 2 days ago

    If I don't eat in the morning, I have extremely low energy and am very cranky.

    That makes it harder to mask, because the decisions I would make with low energy and crankiness are not the same ones I would make if I had eaten. It impacts my ability to converse with others in an effective way.

    It also impacts my work output and mood..

  • [removed] 2 days ago
    [deleted]
atleastoptimal 2 days ago

This just seems like "burnout" simulator. What makes it unique to having autism vs being overworked in a job you hate in an alienating urban environment not congenial to human thriving?

Everyone would rather be cozy on the couch under a warm blanket than wake up at 6:30AM every day before commuting to type meaningless stuff at a computer desk, be exposed to a sensory environment that is far from ideal, and converse with people they would never associate with if they didn't have to. The experience of the wage worker is a universally reviled existence that is far from a unique plight afflicting those with high-functioning autism.

Is the implication that someone without autism could deal with all these stressors effortlessly with no need to think or put any effort in?

  • anonwebguy 2 days ago

    I answered this as somebody with 20+ years in this industry. I burned out instantly.

    I had my wife do it, as a stay at home wife. She still burned out and has no reason too. She made it 6 questions. She said she wouldn't have chosen half of the optional questions.

    I'm burned out. She's burnt out from the quiz.

    I'm going to take a PTO Friday.

  • movpasd a day ago

    Everyone's different. Some people genuinely thrive under the conditions you're describing, others don't like it but are able to put up with it no problem, and others can't stand it but are forced to.

    The perspective I've found most useful is this. There is a constellation of correlated "autistic traits", which everyone has to a degree, but which like most traits become disabling if turned up too much. "Autism" is a term describing that state. So, it is much less a particular switch that can be turned on or off, not even a slider between "not autistic" and "very autistic", but more a blurry region at the outskirts of the multidimensional bell curve of the human experience.

    People on the furthermost reaches of this space are seriously, unambiguously disabled, by any definition. They're what people traditionally imagine as "autistic". But the movement in psychiatry has been to loosen diagnostic criteria to better capture the grey areas. Whether this is a good or a bad thing is a social question, not a scientific one, in my opinion. Most of us want to live in a society that supports disabled people, but how many resources to allocate to that is a difficult question where our human instincts seem to clash with the reality of living in a modern society.

    On your last paragraph: I think this is a serious problem with the discourse around neuroatypicality today. My opinion is that the important thing is that we become more accepting and aware of the diversity of the human experience, and that this is a necessary social force to balance the constant regression to the mean imposed by modernity. If that's the case, then drawing a border around any category of person, staking a territorial claim to a pattern of difficulty the group experiences, and refusing to accept that the pattern exists beyond it: it's just unfair, it's giving into defensiveness.

    • tpmoney a day ago

      > They're what people traditionally imagine as "autistic". But the movement in psychiatry has been to loosen diagnostic criteria to better capture the grey areas.

      There has also been a change that reclassified what we would previously have termed Asperger’s Syndrome as Autism. To be clear, AS was always considered to be a form of or closely related to Autism, but that change in language does mean we’ve had a big shift in what is Autism medically and what the public pictures when they think Autism

  • SwtCyber a day ago

    The key difference here is magnitude and mechanism. For autistic people, even "normal" sensory inputs or social interactions can cause physical discomfort, confusion

  • mayhemducks a day ago

    If the expectation of the job is to "type meaningless stuff at a computer desk", doesn't this point to a problem with the expectations of the role? I would submit that if the work is truly meaningless, and it often is in my experience, it doesn't need to be done. Of course anyone would choose a pleasurable activity over meaningless, mundane busy work - regardless of their unique expression of the autism spectrum.

    I also think that there are many wage workers who do not revile that existence. My intuition says it is more common in "office jobs".

    I think the implication is that someone without autism can recover from these stressors more easily. And they tend to be able to absorb these stressors with less of an impact on their mood. People without autism have more control over when their brain is engaged with something, and have to expend less effort when exerting that control. It's not just about physical energy.

    The brain of a person dealing with these types of symptoms is kind of like an engine running near red-line 99% of the time. When someone is masking, for every thought they express, there were likely dozens you didn't hear or see expressed over the course of a short social interaction.

    Other times, they are caught in mental loops. Reading the same line of text over and over, or replaying someone else's comment over and over, and not comprehending because of an auditory stimulus that is monopolizing the comprehension processes within the brain. When this happens, it's easy for them to miss important context or body language when working with others. That requires even more masking to cover up because it's a social faux pas to admit you missed something important. So then your brain goes into overdrive trying to derive the missed information from followup conversation.

    Using sustained, intense thinking to overcome challenges that others don't encounter as often can become the default coping mechanism for this kind of thing. It's not something that is easily noticed, because it's part of masking, but it tends to be more draining than many people realize.

flippantHippo 2 days ago

So interesting to me how many comments here, which are intended to be critques of the game, unknowingly end up giving insights into the autistic experience. I'm not sure if this is intentional, but there's some elegance in how that's played out.

  - I don't like the choices given
  - Why did both options, make my x score drop?
  - I don't understand how this game is scored
  - I don't agree with how this game is scored
  - That's not what masking is/everybody has to do that
In my experience at least, these are the responses to the real world that are at the centre of autism - especially for those undiagnosed / late-diagnosed. Why don't I understand this thing that everyone else seems to, and nobody understands this thing that I've clearly explained 3 times now? Why is x that is so easy for everyone else so hard for me? I don't understand what I did wrong.

Games like this are never going to be perfect simulations of even a single person's experience, but are great for demonstrating that others might not experience the world in the same way as you. And the more people understand that, the more empathy and less conflict there will be in the world.

  • delis-thumbs-7e a day ago

    I think the point of the game is that it is almost impossible (the character is already at the end of the rope in the beginning, surprisingly realistic, since I been there), showing how hostile and random the corporate office jobs are - for anybody, but especially if you have any type of disabling factor.

    But instead people complain ”But it is not a fun game :cry:”. Sigh.

    • Dylan16807 a day ago

      If people aren't expecting an "end of the rope" simulator then it's reasonable if they get confused and object to how decisions are working out.

      It's not your strawman about funness.

      • delis-thumbs-7e 17 hours ago

        I think it is reasonable to expect that a game that is called ”Autism Simulator” is likely neither going to a) be easy b) very enjoyable c) make much sense. You could also complain similarly about the game called ”Paying Hospital Bills Without Money” being unfair or that ”Terminal Cancer Ward” -game is impossible to beat. Hell, why not complain that Josef K in Kafka’s trial is quite unfairly treated? I think it is fairly reasonable to expect the player to manage their expectations and consider the game more as an art piece. Otherwise you miss the point completely.

        • Dylan16807 12 hours ago

          I think it's very reasonable to expect it to make sense. For an autism simulator in particular, I expect my stats to make more sense than in the average simulator.

          That doesn't mean it has to be easy or even winnable, but I should be able to figure out how my choices directly affect me.

          And those other games you theorize put the difficulty in the title. "Autism simulator" does not, and it says at the start that this is supposed to be a "typical work week".

  • Dylan16807 a day ago

    Being confusing and difficult on a meta level gets in the way of learning anything at a direct level. I wouldn't call that elegant.

  • spiralcoaster 2 days ago

    Perfect. So if I'm understanding you correctly, I can throw together a game with arbitrary/irritating rules that many people won't like, and I'll just call it an autism simulator.

    • [removed] a day ago
      [deleted]
kokey 2 days ago

I love it, I have been meaning to put together a similar simulation to demonstrate the effects of interruptions and context switches on developers.

Something like the following:

- a game or puzzle which requires working memory, like matching pairs or some puzzles that need a lot of working memory and/or flipping between screens

- this gets interrupted by fullscreen interruptions of someone's face, and text asking questions, or announcing something, and you have to pick an answer or a reaction (multiple choice)

- it could start with questions like 'hi, are you busy?' or 'can I ask you a question?'

- answers which tries to end the conversation quickly could lead to even more demanding reactions or questions

- interruptions stating there is an emergency can lead to a lot of questions and answers which then leads you to discover than it is in fact not an emergency

- once one of these engagements finish you can return to the game and try to complete it

- you'll get multiple interruptions like this

- other interruptions can also flash up, like a notification that a meeting is due in x minutes

- it could then have a short simulated meeting, perhaps just a line by line scroll of dialogue between others, where you need to say nothing

- however, at some point someone will ask you directly about one of the items discussed, and you will be given a set of fairly ambiguous multiple choice answers which you will have to try out until you get to the 'correct' one

- at the end of the meeting you return to the working memory task/game

- this gets interrupted by someone then asking you about the action points in the meeting

- return to the game

- get notifications about the end of your work day coming up

- more interruptions, etc.

  • roeles a day ago

    In agile circles I have seen this exercise:

    Have two people sit next to each other, each with a blank piece of paper and a pen.

    Have them both simultaneously write down the numbers from 1 to 1: one time in decimal, one time in roman numbers and one time as letters of the alphabet (a=1, b=2...)

    One person goes about it system by system (first decimal, then Roman... ). The other goes about it number by number (1,I,A,2,II,B...)

    Time them both and compare their times.

  • joshcsimmons 2 days ago

    I will share the source code in a few days once it's cleaner. It'd be relatively easy to fork it and plug a new story into the code :)

    • beacon294 2 days ago

      Would love an adhd one.

      • FuckButtons 2 days ago

        I’m sure someone will build one, one of these days, when they get around to it...

lq9AJ8yrfs 2 days ago

I tried this -- I am undiagnosed, but my kids are diagnosed. On one hand I thought parts over-dramatized, on the other hand I thought parts were watered down.

Misophonia for me does not give me any choice. Either the noise stops or I am leaving. If necessary I will explain later. If the noise stops I am possibly leaving anyway in case it starts again. Fortunately in my case the trigger is pretty obscure, like nails on a chalkboard type of rarity -- people don't actually do that so often.

The explanations I thought were dramatized. One of the challenges I think people with autism have is trying to explain their reactions and coming up with things that neurotypical people cannot relate to. It is more like reflexes. I'd be slack-jawed if my co-worker asked me to explain why my leg moved when the doctor hits my knee, "it just does that when you hit it that way", "probably something to do with ligaments, or tendons? IDK". Could you make an "undiagnosed" mode where your scores just go up and down?

And the options -- when the people team came through at $bigcorp and announced tiny hotdesking, I filed all the necessary paperwork, gave constructive feedback, worked with my manager etc, but started looking for new work immediately and noped out at the first opportunity. The people team was happy to close the file which was growing fat with demerits like not hanging my coat the right way, but my peers and reports were upset. well done people team! This was at a company that professed to be supportive of neurodivergence.

  • palmotea 2 days ago

    > This was at a company that professed to be supportive of neurodivergence.

    It's easy to mouth slogans, and modern companies employ teams of specialists in that department. You can't trust their words, which should be assumed to be lies, only their actions (especially their actions when they're under some pressure).

    Here's an absurdly clear example: I recently listened to these podcasts about Saudi Arabia's Neom project. It is hyper-dysfunctional and was run by a guy who literally bragged about treating his subordinates as slaves trying to work them to death. But all the responses from the project are pitch-perfect corporate "we value our employees," "we follow best practices," etc.

    https://www.wsj.com/podcasts/the-journal/neom-pt-1-skiing-in...

    https://www.wsj.com/podcasts/the-journal/neom-pt-2-the-emper...

    • sfink 2 days ago

      If a company professes to be supportive of neurodivergence, it means either (1) they're supportive of neurodivergence; or (2) they are hostile to neurodivergence and have gotten into trouble for it, so have strong motivation to claim that they are supportive. There will probably be written policies and strongly-worded emails that are supportive of neurodivergence, which enable them to continue being hostile to neurodivergence.

      I would guess there's far more of (2) going around than (1).

      This is an overly polarized view -- what does "supportive" even mean? What forms are actually deemed permissible? -- but it's probably more right than wrong.

      It's like the schools with posters everywhere declaring "Zero tolerance for bullying" or "Bully free zone". Except that there is no (1) at those places. Those signs mean they have a problem with bullying and haven't come up with any solutions.

  • ecshafer 2 days ago

    I am not autistic in any way afaik, but "tiny hotdesking" sounds like a torture come up in the seventh circle of hell.

    > This was at a company that professed to be supportive of neurodivergence.

    No company is supportive of neurodivergence, if it actually causes a difference. They are supportive if your issue is you need to wear noise cancelling headphones, and they can put your photo on the careers page about how they support neurodivergence.

    • lq9AJ8yrfs 2 days ago

      Something I am not quite able to compute is why they are so rigid. I paid for a house with enough rooms that I turned one into a generous office. My peers tell me my hobby productivity is off the charts. There is / was no price at which I could solve for an acceptable office environment at this company. At any company I have worked with or heard of.

      I get that there is back biting and intensive score-keeping, resentment etc, but the act of putting everything on a synchronized linear scale (with sub linear progression) seems cruel. Some people like tchotchkies, some people don't like those esoteric office snacks, some people like mouthwash and shoe polish and fancy towels in the restroom. Why gatekeep it all and shove the same exact bundle of goods down everyone's throats?

      If they were really minimaxing your next unit of work, this is not an optimal strategy. It's just lazy, a children's tale of how an office might be.

      • oehpr 2 days ago

        Because for most people, someone reacting with disinterest for the thing they care about is a rare and upsetting event, not their entire life's experience. That's what it means to be "normal", you align better with your peers. Most people don't need what you need. Most people can work with what you can not. You are choosing to be the exception. You chose to be like this, so unchoose it and stop being a problem.

        Of course... That's the quiet part. The out loud part is just dismissing everything you say and passing you over for promotion.

        The objections you have raised, the things you have said. I really understand what you mean. There's evidence all around that the aspects of our experience isn't alien at all. Why can't others see that? At this point I think that not seeing it is necessary mental infrastructure for some people. It's a bridge over an abyss that for us broke.

        I think the solace I get is that this line of work tends to funnel people of our disposition into it. So we find ourselves less alone than we normally would.

  • novok a day ago

    One problem is you can have 2+ neurodivergents or autistic people with conflicting needs or ideal environments. You can only do so much past a certain point in light of that condition. One needs a bright environment to stay awake, another is sensitive to light. Hyposensitive and hyper sensitive. One needs the volume low and the other high in the same meeting. One gets easily distracted by another stimming that they need to stay focused. It gets frustrating fast.

    Autistic people can get sick of other autistic people's shit. Pathological demand avoidance can just make it near impossible to work with them in a normal context and on and on it goes.

    • lq9AJ8yrfs a day ago

      Those all seem like easy problems to solve.

      Draw straws and one person dials in from their desk or a phone closet. Take advantage of multiple locations, which are frequently if not always part of the landscape. I had a similar experience, there was a lady on the same floor who was sensitive to light, versus I had a plant that was dying, so I bought a timer and a desk lamp and set it directly under the lamp to run after hours, and we kept the lights dim during the day.

      At some point the rigidity is just another type of enshittification, there to subtract. Ingrained in their culture and part of their prerogative. Denying them the privilege is an insult that earns greater retribution. Pour encourager les autres.

      It would literally cost them nothing to be flexible. Solzhenitsyn level material.

      Suggests a new unit of measure, the Solz, which characterizes how occult and byzantine the rules are and how vindictive and arbitrary the application. Bonus points for tail-eating and Lysenkoist aspects. Stalin era normalized to 1.

      I had "exceeds" ratings the whole time at this job, btw. I am told my contributions live on 10 years later, I can't say that about most of my work experience.

  • rhubarbtree 2 days ago

    TIL misophonia.

    I’ve realised in recent years that I’m quite far on the spectrum. Very obvious when I was young but am exceptionally good at masking now so most people don’t realise.

    Nowadays I experience misophonia in “attacks” that just come on. Recently I was on public transport and the noise was suddenly so unbearable that I had to get the hell out of there, hadn’t really felt like that since I was a kid. Fight or flight feeling. When I was a kid I had a lot of hearing tests as a result, ASD was not on anyone’s radar.

    Didn’t realise this had a name.

    • boogieknite 2 days ago

      my sister has this which led to many awful fights that i didnt understand. now i send this graphic to people in order to describe it: https://scontent.fhio2-1.fna.fbcdn.net/v/t1.6435-9/130843014...

      • whatevertrevor 2 days ago

        This is a question out of genuine curiosity and not intended to minimize misophonia in any way:

        I do not see any examples of a "naturally occurring" sound there. Is the sound supposed to be human generated in some way? That would feel a bit incongruent with my understanding of it as a pure stimulus response situation.

      • fluoridation 2 days ago

        Interesting how they're all noises people make. It's not chirping birds, or running motors, or anything that could occur when no one else is around.

      • rhubarbtree a day ago

        omg tick tick tick.

        Does everyone have this to some extent? Or is it really only a thing neurospicy folks experience? I have to run away from my wife when she's chewing loudly sometimes, the rage is real.

        I've just realised that my hatred of foly in films is another symptom (https://en.wikipedia.org/wiki/Foley_(sound_design)) - can't watch films where this is overdone.

        As others mentioned, noise cancelling headphones bring me so much peace.

      • lupire a day ago

        Now I need a screechy audio that explains the "misovisia" I experience from seeing that graphic.

    • R_D_Olivaw 2 days ago

      I carry silicone putty ear plugs with me pretty much all the time.

      They are very squishy and I can place then in my ear and depending on how thick I make them, they have varying levels of blocking out sound. Super useful if I want extra blocking or just a little light blocking so I can still hear things around me, but dampened.

      They have been a life changer for me. The best kind I've found are Mack's. Maybe they would help you too.

      • beacon294 2 days ago

        Ahh I can't stand that pressure feeling, makes me take them out instantly!!

        • freehorse a day ago

          ANC over-the-ear headphones can also do a very good job against certain kinds of noises, esp in higher frequences.

    • idiotsecant 2 days ago

      I also thought I was exceptionally good at masking. Turns out I was exceptionally good at showing a differently weird version of myself that was still quite clearly weird.

    • joshcsimmons 2 days ago

      I gaslit myself over it for so long. It makes me see red when I hear open-mouth chewing noises. Totally illogical.

      • sfink 2 days ago

        Oh wow, I was just feeling grateful that I don't have misophonia, but then you had to mention chewing noises. I had that for decades. It wasn't all the time, but it didn't have to be loud or open-mouth or anything. It would just switch on and I couldn't hear or think about anything else. I daydreamed doing violent things to make the person stop, even when I logically knew it wasn't even slightly loud or unusual or ill-intentioned.

        It almost never happens anymore, thankfully. Once every other month or so.

        (Note that I am not autistic, or at least undiagnosed and my guess is that I wouldn't be. I just have some fairly mild autistic tendencies. I have a toe on the spectrum, or something. Those tendencies have a pretty dramatic impact on my life, but I think in a mostly neurotypical way -- we boring people can have similar problems too!)

        • SchemaLoad 2 days ago

          I have to feel that most people find this unpleasant to some level since "eat with your mouth closed" is such universal manors that gets drummed in to you as a child. But I guess the difference is if you find it gross vs if it sends you in to a fuming rage at the smallest exposure.

  • qwertytyyuu a day ago

    yeah the misophonia one confused me too. Why is the radio even on, why does turning if off use up so much energy?