Comment by lordnacho

I had an old teacher who died almost a year ago.

Great guy, very sociable, knew everyone in the little town he lived in. Kept in touch with a lot of students. Good neighbour, friendly guy who'd talk to everyone.

He got Alzheimers. He started forgetting stuff, and it frustrated him. He got caught driving dangerously, and cursed the doctor who took away his license.

He argued with me about the state of some chicken he wanted to cook. I told him "this is pink all over, you have to cook it more". He got angry. I understood he'd become like this to everyone.

He pissed off everyone on his street, and all police, medical and social workers sent to help him. The disease made him blow up every relationship he had with anyone that he didn't know well, like me and a couple of colleagues.

He got found in his house, having left the gas on, endangering the whole street. He ended up in a care home, not knowing who he was, or who I was.

If he'd been run over by a car, or died of a heart attack at the age of 80, people he knew would remember him as that nice old guy who had a dog and made a lot of art, and was friendly to everyone. Instead he was that 83 year old guy who pissed off everyone, nearly blew up the neighbourhood, and drove like a maniac.

You really don't want to end up with dementia and related illnesses, it totally sours everyone's view of you.

Freak_NL 3 days ago

It doesn't seem pleasant for the person themself either. Constant frustration, gaps in your memory growing ever larger, disorientation, loss — periodically augmented by brief flickers of recollection of what you used to be — and yet no one can legally end your misery, because you can likely no longer unequivocally consent to euthanasia or assisted suicide, even if you explicitly signed a declaration that you did not want to end up like this — legally, the current husk of your former self must consent, and it can't.

  • LorenPechtel 3 days ago

    Some places permit consent in advance, the person specifies the conditions but hands the evaluation of whether they have been met to the doctor.

  • firesteelrain 3 days ago

    It’s still absurd despite what you say that we are implying that we should euthanize another human because they have become difficult to manage due to illness. Where do we draw the line?

    • teiferer 3 days ago

      > we should euthanize another human

      You are shiftinf the topic. This is about self-euthanization, assisted suicide. Not others.

      > Where do we draw the line?

      As written elsewhere, having to draw a line does not mean that the only reasonable conclusion is to make it illegal in general. It's a hard topic without easy answers. "Don't allow it" is an easy answer that doesn't do justice to the topics complexity.

      A good friend of mine passed away a year ago with an incurable disease, diagnosed 3 months before his death, and it was essentially guaranteed that he'd have to endure unbelievable suffering during the last weeks of those months. He didn't have the choice to end it early. It was heartbreaking.

      I for my part hope that I can choose myself when the time has come.

      • firesteelrain 3 days ago

        It is not really a shift. The slippery slope is the heart of the debate. Once assisted suicide is allowed, the line between respecting autonomy and others making that decision blurs. Safeguards may help, but asking where to draw the line is the central problem.

    • Freak_NL 3 days ago

      I am not implying that at all. People should be free to choose when to die, and people should be free to set conditions for their future wherein they no longer wish to live even if they could not express that at point.

      That's a personal choice. Anyone not interested in that won't have to do anything and can just wait for the end.

      • account42 a day ago

        It's not that simple. Once the option is there, there is incentive to encourage people to take it when their continued existence would be a burden.

    • cwillu 3 days ago

      You can quite easily draw a line that society does not get to force someone to live a tormented existence in spite of their prior declaration that they do not want to be tormented.

      “It shouldn't be that way” is not an excuse to torture people through your moralizing indifference to the fact that it is that way.

      • rkomorn 3 days ago

        I've wondered about this for my hypothetical future self.

        Currently? I'd say that I wouldn't want to live with dementia, but what if my "demented self" (kinda hate the phrasing, sorry) in the future wants to live, or doesn't remember they don't want to live?

        Do I have a say over the life of someone who doesn't remember they were me?

      • dotnet00 3 days ago

        The entire issue they're pointing to is that deciding that someone's existence is sufficiently tormented is difficult and morally fraught.

      • Noaidi 3 days ago

        But do people who have dementia or say a mental illness have the capacity to make that decision?

        It sounds like Daniel Kahneman was suffering from depression after his wife's death and all he saw in the rest of his life was sadness. He had no hope. What day was the best day to die? What if the next day his hope came back?

    • stavros 3 days ago

      I think the implication was more "people should be free, when they're of sound mind, to choose euthanasia if they lose that sound mind".

    • [removed] 3 days ago
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dotnet00 3 days ago

This is such a cruel perspective, implying that he'd be better off dead, for what, 3 years of inconvenience to his community, despite the previous 80 years being spent contributing positively to it?

You even literally show that he isn't solely remembered for those last 3 years of his life. We owe people like that care and understanding, not murder framed as mercy.

It's always so painful to see old people around who are clearly living alone, forced to do everything themselves, having to ask strangers for help because they're afraid of being a burden, and their actual children can't find time for them. Only to now see people actually supporting murder because old people become a burden for a couple of years near the end of their life.

  • troad 16 hours ago

    Thank you for saying this. It's not a popular view, but it is the correct one.

    > You really don't want to end up with dementia and related illnesses, it totally sours everyone's view of you.

    I don't think I've read a wilder defense of euthanasia in my entire life.

    This is a "great guy" who committed his life to teaching kids, being a good neighbour, and his reward is one of his former pupils arguing he ought to be killed because he's grown unwell, he's unable to maintain his optics, and the community he gave his life to has therefore 'soured' on him. How very inconvenient for you, that this man is unwell.

    What message is this supposed to send to anyone? "Don't get invested in trying to be nice to the neighbours, they're all ghouls who'll have you shipped to the glue factory as soon as you stop seeming useful." And once everyone internalises this level of social atomism, where do you expect these 'great guys' to keep coming from?

  • joelwilliamson 3 days ago

    He’d be dead either way, the question is if having those three years were a net improvement to his life

    • bhl 3 days ago

      Not for us to question or answer though.

    • account42 a day ago

      Putting that up for discussion makes the world worse than any suffering that may be experienced during that time.

    • dotnet00 3 days ago

      By that logic we should invoke the death penalty for everyone who has been sentenced to life in prison and has exhausted all their appeals, or any seniors convicted of a crime.

      Their life probably won't improve anymore, and in the latter case they're going to die in a few years anyway, so might as well just lighten the load on society?

      • esafak 3 days ago

        No, you'd let them decide if they want to die.

    • ipaddr 3 days ago

      3 years living vs dying is a 3 year net improvement on life. Such silly statement.

      By your logic we should kill everyone at their peak.

      • prmoustache 3 days ago

        I've known at least 2 old persons who were literally looking forward to their death because of chronic pain and general boredom and frustration of requiring 24h/7 assistance and not being able to live the way they used to.

        They would have likely used assisted suicide if it had been an option back then.

      • hannofcart 3 days ago

        On the contrary, I urge you to consider whether it is your statement that is overly dismissive. Is there perhaps some existing conditioning, maybe in the form of religious upbringing that is driving your reaction to this? Many of us in fact find OP's a very thoughtful comment than a "silly statement".

        > By your logic we should kill everyone at their peak.

        No, they suggested that the old and ailing whose quality of life has deteriorated to the point where there is no hope or no more joy in living, ought to be given the choice.

        Let me end by quoting my favourite lines from the HN guidelines:

        "Please respond to the strongest plausible interpretation of what someone says, not a weaker one that's easier to criticize. Assume good faith."

      • procaryote 3 days ago

        In medical research on treatments the outcome is often measured in quality adjusted years of life, because just keping people alive at any cost is a bad metric.

      • raw_anon_1111 3 days ago

        3 years of living in constant pain - not saying it’s the case here - is not better than being dead to some people.

      • anigbrowl 3 days ago

        That's literally a one-dimensional analysis. Are you sure you're not missing any other relevant factors?I find it hard to believe you uncritically think 'more = better' in every context.

        • ipaddr 2 days ago

          More doesn't equal better but it is no one choice but the person. Not society or the medical system assigning a quality of life score.

      • ReptileMan 3 days ago

        A beautiful woman dies twice as the old saying goes.

        While what you say is extreme there is a point in the decline past which there is no point of living. If you have something worth living for - cling to life and to 107 if you like. But if the only thing that waits you is to slowly decay and fade and lose yourself - what is the point?

  • anonzzzies 3 days ago

    But this guy wanted to die right? Bit different. Agreed that 'how others view you' is such nonsense. People are cruel that way and also: those children who couldn't be bothered visiting or helping out, will be standing at the funeral sniffling and telling 'such great dad stories'. Makes my blood boil.

AQuantized 3 days ago

> You really don't want to end up with dementia and related illnesses, it totally sours everyone's view of you.

This seems like such an absurd conclusion to this, as though the opinions of other people of you are what matter when you functionally lose your personhood and then die.

Maybe a better focus would be that there often isn't a good way for a community to manage a person who suddenly becomes irrational because of an illness.

  • sillyfluke 3 days ago

    The parent described someone who went above and beyond the norm of other members in his community in his constant positive interaction with his neighbors, collegues, and former students. It is highly likely this kind of person would give a considerable shit if he knew he would become a nightmare for the same community.

    There may be others reading in the thread who also can relate to the personality of the teacher and may care about their affect on others when they are "not themselves".

    • dns_snek 3 days ago

      There's a difference between "I don't want the disease because I don't want to become a menace to others" (what you're saying) and "I don't want the disease because it would make me lose social status" (what the original commenter said).

      • wjnc 3 days ago

        I am left wondering. Can’t people (in general) understand that Alzheimer’s changes a person fundamentally, irreversibly and forever until death follows? Many positive traits of personality disappear, the negative starts to dominate, I think mainly from fear and a subconscious awareness of what is being lost. That’s pretty much 101 of grieving when a loved one is struck with Alzheimer’s. The person has left. You continue caring for a body / a different person because of the relation you have to a former them. But please don’t connect the persons past deeds and being to the actions with Alzheimer’s.

        For myself: I hope for assisted suicide before Alzheimer’s. I value me for me. Not-me I don’t value, and Alzheimer’s does not improve not-me over me. But people who cannot separate me from not-me (with whom not-me loses status for me)… I don’t care about them! (Philosophical mood.)

        • whatshisface 3 days ago

          Very few people would choose to be unpopular, and unfortunately this type of behavior is decided by brain function, things like depression, from the beginning.

      • ToucanLoucan 3 days ago

        Either and or both?

        I don’t want to go that way either. If I start losing my mind to Alzheimer’s or dementia I don’t want to slowly turn unrecognizable to those who love me, fuck that shit. Give me something suitable and I’ll do it my damn self if needs be.

        • dns_snek 2 days ago

          FWIW I agree with you. I want to go out on my own terms if I get that sort of diagnosis. The only major health-related concern I have is that I'll some day experience a traumatic health event that immediately disables me and stops me from making that decision, whether legally (competency) or extralegally.

          I know there are medical directives that can be put in place but they don't cover everything and they can't compel anyone to end my hypothetical misery, the most they can do is withdraw care.

      • anjel 2 days ago

        There are lots of degenerative diseases particularly striking the various biological systems of the body. But neurodegeneration, whether Glio, ALS or dementia are especially cruel and horrific in that they attack and erode the patient's personality, a fundament of individuality and self.

      • [removed] 3 days ago
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      • rowanG077 2 days ago

        To me both those things are basically the same.

  • carefulfungi 3 days ago

    In my experience having had a parent suffer this way, you lose them before they are dead and you grieve along the way. I can understand the "souring" phrasing - in that there is less affection for the altered person in the present even while feeling a duty for their care and a deep love for who they were.

    I'm grateful for this story - it's powerful to see examples of autonomy at end of life - and contrasts starkly with the experiences many of us have with aging parents. End of life, at least in the US, can be deeply flawed and misery for all.

  • wazdra 3 days ago

    Valuing how others remember you is definitely a motivation in life for many. I respect that it is not your own, respect that it may be mine. It is by no means "absurd".

    • lo_zamoyski 3 days ago

      It is absurd because it places subjective opinions over objective goods. This is the vice of “human respect”. Human beings do not have a final say about others. They can opine, but opinions are like buttholes, everyone has one.

      Sure, it is nice to be remembered well, if you deserve it, but I do not live for the opinions of others. This is slave mentality and pathetic. I care about being good, and if I am hated for that, then so be it. Sad, but better to be hated for being a good person than loved for being a mediocrity or a knave.

      And to off yourself out of concern with how people remember you is a condemnation of our society, our lack of charity, our lack of magnanimity, and our selfish prioritization of convenience. Full throttle consumerism.

      • tirant 3 days ago

        The definition of good is probably the closest to doing the opposite of inflicting pain on others. There’s very little chance that you will be hated by being good. So definitely behaving or being good is not so different than behaving in a way that other people don’t hate you.

      • perching_aix 3 days ago

        > It is absurd because it places subjective opinions over objective goods.

        Care to name even a single objective good, and explain how exactly it is objectively good?

      • LocalH 3 days ago

        There is no such thing as objectivity in human experience. Every single thing, even attempts to be objective, are all filtered through the subjective experience of life. Our brains interpret objective reality and provide us a subjective translation.

        • lo_zamoyski a day ago

          Then if your claim also a mere subjective emanation, and an arguably mysterious one?

          The subject receives the object in the mode of the subject, yes, but this does not mean that knowledge of the objective is impossible.

      • Der_Einzige 2 days ago

        You were so close to genuine self-ownership in this post, especially with decrying slave morality - than you ended by getting spooked all over again.

        You might enjoy “the unique and its property” by Max Stirner. An excellent philosophical book and especially relevant given that Alzheimer’s takes away the self…

      • flextheruler 3 days ago

        The point is he deserved to be remembered well but due to recency bias and the severity of whatever he did during the end stages of his disease he will not be. I personally suffered immense trauma in my early 20s when I moved to a really cheap place. My parents refused to believe me that there was a black mold and general mold problem in the place I was living and that it was causing me psychological distress and flaring up my eczema. Despite all evidence that I had they dismissed it because I had told them I was depressed beforehand. They are not very in touch with empathy or compassion or mental health. Very old-fashioned view that these things are character flaws which are not to be spoken of. Anyways they dismissed my concerns did not read my messages or view my pictures of personal property being destroyed and the landlord not responding to me, the whole rental was illegitimate and I had identified that early on they even ignored that I got a scalp infection which I had to take oral anti-fungal medication to get rid of. The preponderance of evidence was so overwhelming, but for whatever reason they could not admit I had been right and that they were wrong and refused to help me and actively discouraged me from taking legal action or even to move home for months. Eventually I was blessed with an extended relative who gave me shelter. During one of the worst parts of this period my parents even went so far as to assert that what was actually happening to me was the onset of paranoid schizophrenia. I was close to the right age and sex for it to happen. I knew that paranoid schizophrenics often become homeless and violent and the general awfulness of the condition. If it was not for my own investigation that there was no family history of it and a friend who believed what I was saying and told me that I needed to leave the house and then finally extended family I had a plan to no longer exist. This was partially out of not wanting to be remembered badly, but also so many other things like; not wanting to hurt my loved ones, not wanting to hurt strangers, not wanting to slowly degrade into an unstable and potentially dangerous person and of course the median life expectancy for that condition is so low. I lacked the constitution to allow myself to become someone who would likely damage the world and severely damage those close to me so my logical conclusion based on a false premise during those couple days was to nip it in the bud so to speak as it's a progressive condition. My relationship with my parents has not been the same since, but how could it be. I am forever indebted to a friend and extended family... they quite literally saved my life.

        The end point being that with the parents I have there was nearly a guaranteed outcome of only objectively bad things happening for me, for them, for people around me. During that state I saw my plan as honorable and wrote it down in what I was to leave to explain my actions.

      • ares623 3 days ago

        A god need not concern himself with the opinions of men

    • [removed] 3 days ago
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  • Noaidi 3 days ago

    My brother had schizophrenia. No one thought well of him. I guess he should have killed himself as well by the logic some are professing on here. Oh, he tried, but he ended up dying of heart disease.

    > Maybe a better focus would be that there often isn't a good way for a community to manage a person who suddenly becomes irrational because of an illness.

    Yes, this is the focus. Science has stalled when it comes to neurological disorders. But the response is love and understanding. I do not understand how someone would "sour" on a person because they have an illness. A very absurd conclusion indeed.

    • prmoustache 3 days ago

      Dementia and Alzheimer is not something that can simply be managed throught treatment. It is an inexorable descent into suffering for both the person and its entourage with absolutely zero hope of getting better. At best in the last stages you get very short glimpses of normality within hours of confusions, frustrations, anger and pain.

      If I am ever diagnosed with one of those, I absolutely want the chance to end my life before I reach a stage I become a burden to my loved ones and can't give a trustable consent. I'd rather go too soon than too late.

      • Noaidi 3 days ago

        I’ve had a lot of people suffer in my life from health conditions, ranging from mental illness, heart disease, and cancer. And I’ve had to take care of them all at different times. Did I consider this a burden or a gift? Oh, it was hard, but does that mean it’s a burden?

        If you think you’ll be a burden on your loved ones can we really say they’re your loved ones? This is a serious question. If you’re thinking that you’ll be a burden do you think that these people really love you?

        At least I would want to let them use experimental drugs, or do anything to further the cause of curing Alzheimer’s.

        But again, this is all far from the original article about an old man who decided to die because well, we don’t really know, he just didn’t see the point of living anymore.

      • LorenPechtel 3 days ago

        Yup. Ask me if I want to live. If I'm unable to answer and it's not reasonably expected that I will be able to answer in the future then the answer is no. I am the mind inside, not the body outside. If the mind is gone that's it, the body is worthless.

    • Aeolun 3 days ago

      > I do not understand how someone would "sour" on a person because they have an illness.

      It is extremely exhausting to try and be ‘understanding’ of someone that does everything to sabotage themselves.

    • ghssds 3 days ago

      > I guess he should have killed himself as well by the logic some are professing on here.

      Maybe people are able to answer that question by themselves and don't need the judgement of other people answering differently.

  • pas 3 days ago

    the conclusion is true, though obviously the worst part is that this guy spent at least a year in varying states of despair, anger, and even worse psychological terrors.

    you don't want dementia because it damages and hurts you and everything and everyone around you

    (my grandpa physically attacked grandma multiple times in his last year)

  • coldtea 3 days ago

    >This seems like such an absurd conclusion to this, as though the opinions of other people of you are what matter when you functionally lose your personhood and then die.

    They do matter.

    Being concerned with how your behavior affects your family or your community, and the opinion they have of you, above your own self-interest, is how good parents, good friends, good citizens, and so on, are made.

    • dns_snek 3 days ago

      > Being concerned with how your behavior affects your family or your community, and the opinion they have of you, above your own self-interest, is how good parents, good friends, good citizens, and so on, are made.

      You've changed the meaning behind the original comment in a subtle but important way. The original commenter wasn't concerned about their effects on other people, they were concerned about how the disease would ruin their public image. Maybe they didn't mean that but it's what they wrote.

      This distinction matters because those people whose top priority is their public perception (i.e. social status) are never "good people". It's normal to care about your social status to some degree but it shouldn't be the first thing you consider.

  • abustamam 3 days ago

    My wife's grandma passed some years back due to dementia/Alzheimers. Her final memories of her were of struggling to change her diaper because she insisted "she didn't need a change" and being really racist.

    I really don't want my family's last memories of me to be that. Yeah my wife remembers when her grandma was of sound mind, and has some good memories with her back then, but they stopped due to the disease.

    Everyone should be entitled to their own opinions on how they want to be remembered. I would rather be allowed to pass in sane mind.

  • idiotsecant 3 days ago

    It's not so absurd. The only afterlife that exists (in a materialist sense) is what other people think of you. The only part of 'you' still around us quite literally just a memory in someone's head. That's not nothing.

    Whether we should care about that or not is a philosophical conversation, I suppose. I would take the side of if we care about what people think about us when we are alive, surely we should care what they think of us when we are dead. Otherwise, we only value their opinion of us as a function of what they will do for/to us, which seems not great.

  • alex77456 a day ago

    This is a maximalist view, in reality not feasible or scalable. Of course this is what we need to strive for, but aiming to decrease 'total unhappiness' with what we have, is a rational, if somewhat cynical, aim.

    But even at aface value, more rational long-term approach would be to treat it, surely

  • doetoe 3 days ago

    To more precisely represent the words of the person you're replying to, you should have said "memories" not "opinions".

  • dkga 3 days ago

    This. Life is such a precious random occurrence that failing to protect it in the face [dementia|physical disabilities|etc] is the real tragedy.

    • darkmighty 3 days ago

      It's not like life stops when someone (with a grave an irreversible condition that causes suffering) dies. It goes on with the young generations (i.e. the billions of them!). I think too much clinging to a single life causes the whole (which is more important) to suffer. That's not to say we shouldn't value and respect elders, but clinging to life excessively is ignorant and potentially cruel, in my humble opinion. I defend the right to die in the face of incurable diseases that cause a lot of anguish and suffering.

      I think clinging to life is partially rooted in an egoist/solipsistic metaphysics that you yourself are all that matters (to yourself at least, of course). Relax, we're just a small part of the cosmos. Ancient and immortal :)

      • jonhohle 3 days ago

        The alternative being when someone becomes inconvenient to others we should encourage their death? What good is compassion or empathy when the lesser in society could just go off and die, right? Why stop at incurable diseases? Political opponents, coworkers, nasty service workers, double parkers, lawyers, and many other groups cause a lot of anguish and suffering.

    • sillyfluke 3 days ago

      As I mentioned in a another comment, framing it as "how one is remembered" is leading to pointless tangents in this thread.

      The important point is this: are you causing emotional, psychological, physical distress in the real world to those you care about when you have this disease? Yes or no. That's what I care about. Whether they are able to remember me well despite that, or poorly because of that should be completely secondary.

      • lo_zamoyski 3 days ago

        That’s irrelevant here. What is relevant is that we have a contempt for human life and a lack of charity. The teacher was not at fault for his condition. We should learn magnanimity.

        Sure, we can think about how the burdens of caring for our family can be lessened as they age, or how we may help reduce that burden for our family, but family does have the duty to care for its members, and to place such considerations above the intrinsic value of human life is very sad indeed.

    • paulryanrogers 3 days ago

      What does protecting life look like when one is literally losing everything about themselves that they value?

  • ratelimitsteve 3 days ago

    idk man whether the people I love hate me matters to me...

    • [removed] 3 days ago
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ignoramous 3 days ago

Jason Zweig, Kahneman's friend, wrote about this and many other thoughts Kahneman would have gone through in making the decision.

  As Barbara Tversky, who is an emerita professor of psychology at Stanford University, wrote in an online essay shortly after [Kahneman's] death, their last days in Paris had been magical...

  One afternoon, according to her online essay, she asked what [Kahneman] would like to do. "I want to learn something," he said.

  Kahneman knew the psychological importance of happy endings. In repeated experiments, he had demonstrated what he called the peak-end rule: Whether we remember an experience as pleasurable or painful doesn't depend on how long it felt good or bad, but rather on the peak and ending intensity of those emotions. "It was a matter of some consternation to Danny's friends and family that he seemed."
https://www.wsj.com/arts-culture/books/daniel-kahneman-assis... / https://archive.ph/fEWrc, The Last Decision by the World's Leading Thinker on Decisions (March, 2025).
  • RickJWagner 3 days ago

    I have to wonder if they could have had one more magical day. Or maybe two.

    Maybe in a different city, or with different friends.

    If he did “learn something new”, could he have incrementally improved upon it, using his brilliant mind? Could he have made one more wise observation?

    It seems he likely left something on the table.

    • LogicFailsMe 3 days ago

      You know how the story is going to end if you stick around for it. I would make the same choice he made. And I would do it before I was ruled mentally incompetent to do so. My wife and I have already had conversations on doing exactly this having watched multiple family members succumb to dementia. It's horrific and the state salivates at institutionalizing you for the final lap.

      No cure for getting old and no cure for dementia on the useful horizon. Having made it to 90 intact, he had knocked living out of the park already. I completely understand his thinking here and support it. He likely could have gone a little longer, but he also might have had a stroke or some other nonfatal cataclysmic event that took away his options.

    • ignoramous 3 days ago

      Kahneman's family & friends who knew beforehand apparently did object.

      You should read the piece by Jason Zweig, if you haven't. The decision was deeply personal and was most certainly not an endorsement of euthanasia.

        ... Kahneman's final email said: "Not surprisingly, some of those who love me would have preferred for me to wait until it is obvious that my life is not worth extending. But I made my decision precisely because I wanted to avoid that state, so it had to appear premature. I am grateful to the few with whom I shared early, who all reluctantly came round to support me."
      
        Kahneman's friend Annie Duke, a decision theorist and former professional poker player, published a book in 2022 titled "Quit: The Power of Knowing When to Walk Away." In it, she wrote, "Quitting on time will usually feel like quitting too early."
      
        She is frustrated by his decision. "There's a big difference between it feeling early and it actually being too early," she says. "You're not terminal, you're fine. Why aren't you taking the outside view? Why aren't you listening to people who will give you good objective advice? Why are you doing this?"
      
        Paul Slovic, a psychologist at the University of Oregon who befriended Kahneman more than 50 years ago, says, "Danny was the type of person who would think long and hard about things, so I figured he must have thought about it very slowly and deliberatively. Of course, those of us who spend our lives studying decisions, we think a lot about the reasons for those decisions. But often the reasons aren't reasons. They're feelings."
    • jfengel 3 days ago

      You're always going to leave something on the table. One of life's trickier lessons is learning when too much optimization becomes less optimal.

Andrex 3 days ago

34M. I live with my mom who's had it for a few years.

It sucks. It's so easy to forget who they were before the disease. This is them now and it's hard as hell.

Simple things that take 1-step for us take 50+ steps for her. She doesn't readily communicate that she's hungry or thirsty or needs to use the bathroom, we have to constantly ask. She's always exhausted and walking around in circles but reacts aggressively to most suggestions to go to bed or take a nap (no matter how we word it). She can't focus for more than a few seconds, so she has no hobbies to occupy her time, and even the TV loses her interest after a minute at most. Her speech is one unbroken babble, and she gets annoyed if someone starts a conversation near her but doesn't let her interject.

Not sure how much more my dad and I have left in us. The disease stripped everything from her and it's stripping everything from us. In-home care is the likely course but she hates all strangers and is always paranoid about anyone other than us being in the house. There's no good solution.

Tell your parents you love them.

  • Remnant44 2 days ago

    I've had just the smallest touch of this caring for my elderly parents, and you have my deep empathy. It's exhausting and really really hard.

WA 3 days ago

Yeah but if you are in that state, you probably don’t give a shit and everybody else seems to be the problem. So how do you solve this? When dementia isn’t too far progressed, your life seems to be still worthwhile to live and once the dementia gets worse, it’s too late to realize this.

  • kranke155 3 days ago

    I read that in some societies, if you ended up not being able to feed yourself, they would bring you to your favorite tree and leave you there.

    If you ended back in camp you’d be welcomed. If you didn’t, that was your end. I found that remarkably comforting and peaceful.

    • pell 3 days ago

      If you don’t make it back you would die of starvation and lack of water. These are some of the worst ways of dying. What do you find comforting and peaceful about it? The person has been abandoned by their community and could suffer terribly for days.

      • kranke155 3 days ago

        The idea is the tree is not too far from camp. It should hours not days to return. And I suspect they would check on them.

    • sph 3 days ago

      I have this childhood memory of my neighbour's dog, that grew old and one day decided to go out in the woods and die peacefully. They found it a few days later.

      I wish to remain so lucid when the time comes, that I can go sit under a tree and let myself go like that old dog. Perhaps I should leave a note.

      • mock-possum 3 days ago

        I always think of that scene from Donnie Darko - where he says when his dog got sick, she went to hide under the porch. “To die?” His therapist prompts him. “To be alone” he corrects her pointedly. [0]

        That’s kind of what I want when I die too - I don’t think I want to be around other people when it happens. I want to have my final moments to face death on my own, without feeling like I have to perform for other people.

        … that said, give me another 60 years to chew on it and maybe I’ll feel different.

        [0] https://youtu.be/8j1IMBM-QyE?si=jfCe9YUvKW_t5m5e

    • raffael_de 3 days ago

      Or they'll treat you with a daily oil bath and feed you tender coconut water ... until few days later your kidney's blow out.

      https://en.wikipedia.org/wiki/Thalaikoothal

      • razeh 3 days ago

        I think people tend to underestimate the risks in allowing suicide —- here’s a blurb from the linked article:

        However, social acceptance may lead to more egregious abuses: the issue gained a higher profile in early 2010, when an 80-year-old man escaped after discovering his intended fate and heard his family members discussing how they were going to "share" his lands, and took refuge in a relative's home.

    • troupo 3 days ago

      Death from hunger (esp. when you're frightened and don't understand what's happening) is neither comfortable nor comforting

      • kranke155 3 days ago

        Fascinating that you think someone with dementia would be suffering more from hunger then from their condition sapping away at them.

  • pflenker 3 days ago

    You could express your wishes about how you would like to be treated in advance, while you are still clear in the head. That’s already possible for other situations, like when you are braindead and entirely dependent on machines to keep you alive, with no chance of recovery.

    • 0xEF 3 days ago

      Having a living will is a great idea in general. My dad got a brain tumor and had no documentation on what he wanted do with his estate, in the event he became vegetative, etc. By the time he realized he needed one, it was too late for "sound mind judgement" and my mom had to go through this ridiculous legal process to ensure she held on to his assets and whatnot while she was directly caring for a dying man.

      Save your loved ones some grief, create a living will with a trusted lawyer, update it about once a year. It's worth it. There are so many insane snafus one can get into with estranged family members, the state/gov't, medical institutions, etc that make the situation even more difficult and stressful to deal with. Don't expect anyone coming out of the woodwork to act according to honor. They are vultures and know no such kindness.

      • atonse 3 days ago

        You can create one with LegalZoom for very little money.

        It includes a one hour zoom session with an actual attorney to explain things.

        They make it so easy.

      • [removed] 3 days ago
        [deleted]
      • esafak 3 days ago

        Unfortunately some people refuse to prepare because they don't want to think about death.

    • markus_zhang 3 days ago

      Even if you express this in a wish, but you probably don’t remember it when you are deep into this, how does it get executed? I’m curious about this, so does the court overrule the current you with the previous you?

      I get it’s easy with other diseases such as cancer, though.

      • pflenker 3 days ago

        Same as with other similar agreements. A doctor needs to declare your mental fitness. When in doubt, a court gets involved. As a rule of thumb, if you are able to understand enough to getter law involved you’re likely still mentally fit.

      • hrimfaxi 3 days ago

        You express it in writing in an advance medical directive.

    • WA 3 days ago

      > You could express your wishes about how you would like to be treated in advance, while you are still clear in the head.

      You can't express in advance that you want to have assisted suicide.

      Your former self might express wishes, but what if your later self doesn't feel like this anymore? In a way, we can all get the same feeling when doing another round of "lose weight this year" new year's resolutions just to realize a couple weeks later that the former self wasn't that trustworthy to begin with (or was it the other way around, the future self can't be trusted?)

      Point is: you can wish for whatever you want, but dementia is probably a tough case and it shifts your priorities, making everything before obsolete and I'm not sure that people beginning to suffer from dementia ever find the right point in time to end life early.

      • pflenker 3 days ago

        The same argument would apply to any other kind of will or testament. You need to update it frequently. It’s not uncommon for people to change their mind quite late, and (at least in Germany) that’s perfectly possible even until late. If people dispute this later change of mind a judge needs to get involved, and being married to one I can tell you that they treat each case differently and with the appropriate care.

        Arguably the best qualified person to decide what to do with Future You is Present You.

      • bityard 3 days ago

        Uh, new years resolutions are not exactly what I would call the ideal metaphor for assisted suicide.

        Plenty of people here who reacted negatively to OP's suggestion seem to not have had to deal with a loved one who dealt with Alzheimer's or other forms of dementia. It's not hard like taking care of a toddler is hard. It's hard like, "this is not the same person I know for my whole life, they don't recognize me, they say and do mean things to me and their grand-kids and neighbors all the time, and require 24x7 supervision to not hurt themselves or break everything in the room."

        Oh, and remember that in the US, all nursing homes for this kind of thing are for-profit companies backed by venture capital, meaning they are expensive as hell. Take your current middle-class apartment, shrink the size to just a bedroom (that you now have to share with someone else), and then quadruple the rent. Just a few years of that can decimate the life savings of the average retiree and/or their children's.

        I speak with some authority here because all of this happened to my father. He was "alive" in the last few years of his life, but not what anyone would call "living." I absolutely do not want that to happen to me. If it were legal in the US, I would absolutely opt for an assisted suicide plan for myself.

        There are ways to handle it that avoid all the "whatabouts" that you and others have already brought up. One rough draft of an example: 1) Have a lawyer write up a kind of will expressing my wishes. 2) Get three unbiased negative diagnoses to show I am of sound mind prior to signing the will. 3) Go in for regular testing (every year, maybe two). After each negative diagnosis, add another (witnessed and/or notarized) signature to the will. The will is not valid if testing or a signature is missed. 3) If there is ever a positive diagnosis, it must be confirmed by two other clinics. 4) If three years pass with doctors and clinical tests confirming increasing dementia symptoms along the way, the assisted suicide clause is invoked and I get to pass peacefully surrounded by loved ones instead of being a stressful burden on them for years or decades to come.

        Yes, there are details and unintended consequences that neither me nor anyone else can see ahead of time. Like everything else, they are dealt with as they come up. No, you won't convince me that your favorite corner case means the entire idea is invalid.

        • hrimfaxi 3 days ago

          > Plenty of people here who reacted negatively to OP's suggestion seem to not have had to deal with a loved one who dealt with Alzheimer's or other forms of dementia. It's not hard like taking care of a toddler is hard. It's hard like, "this is not the same person I know for my whole life, they don't recognize me, they say and do mean things to me and their grand-kids and neighbors all the time, and require 24x7 supervision to not hurt themselves or break everything in the room."

          This is exactly it. It's like dealing with a curmudgeonly toddler with extreme agency and no self-awareness. The rest of your comment is so spot on or at least matches my experience. I'm sorry you had to go through it but you genuinely seem to have become stronger from it and I'm grateful you could share your experience with us.

    • dotnet00 3 days ago

      Being braindead is pretty different from having Alzheimers. How do we account for people who change their minds? Do we just forcibly murder them anyway?

  • JumpCrisscross 3 days ago

    > how do you solve this?

    You don’t. You try to take care of yourself before you’re gone. If you miss that opportunity, you and your loved ones suffer. Same as it is for everyone now.

  • LorenPechtel 3 days ago

    Give me a timer. Like the previous discussion of a red button it verifies identity. I can set the timer for whatever I want, if it reaches zero it peacefully kills me. Dementia, set the timer for say 1 month. If my mind is too far gone to reset it it will run down.

rolandog 3 days ago

I read your comment and it strikes me as a cautionary tale that can be used by bad people to justify or push for eugenics: "they took him; they said he developed Alzheimer's".

As we're currently seeing happen: whatever is left unsaid in the body of the law can and will be abused by evil people to concentrate more power (even if the spirit of the law advocates for something kind).

So, we have to normalize some sort of stress tests for laws... because you sure don't want to be dragged against your will because you're poor.

  • sillyfluke 3 days ago

    Yes, there is a danger of that in general. I think someone made a movie in Japan about the subject, specifically because there is a culture of the elderly not wanting "to be a burden on the younger generation." Some said it hit closer to reality than science fiction because of that specific cultural characteristic in Japan. It also supports Kahnemen's position of pulling the plug when "the going is good" from a ethical point of view, since it leaves no doubt of intention.

    • netsharc 3 days ago

      This was also mentioned in the debate about euthanasia in the UK; that it could lead to pressuring elderly relatives to off themselves. I can imagine the pressure might not even be explicit, it could be implied, and maybe not even consciously, but through behavior.

      Like a more subtle form of Shakespeare's "Will no one rid me of this meddlesome priest?".

      • ipaddr 3 days ago
        • rolandog 2 days ago

          Interesting article. I personally side with the opponents in this regard:

          > But opponents argue it's being used as a cheaper alternative to providing adequate social or medical support.

          I personally think that all attempts should be made to provide homeless and sick people with treatments, and they shouldn't be pushed in that direction if they do not want it.

          If we do not have the capacity to do so, then my view is that we are failing as a society to provide adequate care for all in their time of need.

          If a country is able to build dozens of city-sized data centers, then it is clearly choosing not to treat and house a certain part of their population.

  • HighGoldstein 3 days ago

    > I read your comment and it strikes me as a cautionary tale that can be used by bad people to justify or push for eugenics: "they took him; they said he developed Alzheimer's".

    Isn't the point of eugenics to influence population genetic trends? Not a very effective strategy to kill people when they already have probably 2 generations of descendents.

    • rolandog 3 days ago

      I think you are right — definitionwise. But I think you're not thinking about the impacts it can have when grossly misused as I hinted, and how this might be one tool in the cruelty toolbelt of oppressive regimes.

      By targeting their support networks, the "baddies" effectively end up making the new generations risk for impoverishment greater (can't let the kids at grandma's, have to pay for daycare, lose access to nutritious inexpensive meals, etc).

  • ipaddr 3 days ago

    Leading cause of death in older populations in Canada is assisted suicide. People have killed themselves for not getting timely services and the medical professionals bring it up as an option.

dbZJtFuAXUrVLmY 3 days ago

This comment really bothers me. I am not put off by the idea that the memory of a person is worth protecting, what I am put off by is the suggestion that death is a good option here, or that death is better than having lived those 3 years of life. The idea that when someone loses the capacity to retain their reputation and dignity it would be better for them and others that they were dead and that they have nothing good to offer is such a dangerous one and is just wrong. It applies to many people who are not near their end of life too. I am really pro assisted suicide as a way of shortening suffering when made as a conscious decision by people of sound mind, but comments like these make me very very uneasy.

  • bityard 3 days ago

    > I am really pro assisted suicide as a way of shortening suffering

    You don't consider years of mental trauma on the individual and years burden and stress on loved ones to be suffering?

    • dbZJtFuAXUrVLmY 3 days ago

      I don't think the average amount of suffering for people with Alzheimer's and their families is sufficient to warrant euthanasia as a solution. I don't doubt there are some cases where it could be warranted, but I find it very difficult to get behind the idea that consent should pass from the individual. I obviously see that people with Alzheimer's and their families do suffer, the degree to which depends on the availability of proper care. We're essentially debating whether euthanasia is a better option to high quality care, and that's where the life of a person becomes a pretty gross economic equation. High quality care deprives families of assets. That tension between selfish (or so called "practical") interests and prioritising the interests of the dying is non-trivial, particular where the dying can't reasonably consent. The gentleman mentioned in this scenario would have had a more dignified death had he been provided the correct facilities, and probably shouldn't have been left to run riot in the community. It pains me that this is a story about how some guy became an asshole in his final years and not one of how a guy was deprived of a dignified death by the structures of society. I suspect to some degree people see euthanasia as a simple way to offer compassion and dignity in death, but I do think it's highly informed by ableist prejudice. There is a wide spectrum of dignity and life left to live in an end of life pathway and jumping to euthanasia as the solution is a pretty dangerous one in my opinion.

      • ajkjk 3 days ago

        It's really up to them, not you. If you're pro assisted suicide you have to be pro other people making the decision in ways you disagree with.

    • zigzag312 3 days ago

      That's the issue with assisted suicide. A lot of old people bring burden and stress on loved ones at some point. How many old people will be guilt tripped into an assisted suicide because of this philosophy?

      • bityard 3 days ago

        I don't see what that has to do with my comment, but okay: A lot less than are unwillingly bringing undue burden and stress to their family and neighbors because there is no legal mechanism to avoid it. Even fewer if we acknowledge that assisted suicide should be an option with a very high bar for those who would qualify. I wrote another comment about one way it might work.

        • zigzag312 3 days ago

          I interpreted your argument that suffering that years of burden and stress on loved ones bring is a good reason for an assisted suicide. Or did I misunderstood you?

          Regarding your estimates, are you just making up a lot of assumptions or do you have any data backing up your relative numbers? In your other comment you seem to assume that anyone not agreeing with OP's suggestion doesn't have personal experience with close relative having a dementia. I'm very sorry for your loss. At least some others (me included) also have had this unfortunate experience, but don't agree. High bar is actually very hard to quantify. All old people are in gradual decline and are relatively close to their deaths. One alternative to your suggestion would be that a state would provide quality professional care for people with dementia. That way the things OP described wouldn't happen and the family of the patient wouldn't have to bear the financial burden of the disease. We are more advanced and richer that we have ever been in human history, but it seems like we are unable, as a community, to provide very ill people with quality care they need.

      • [removed] 3 days ago
        [deleted]
ZpJuUuNaQ5 3 days ago

>You really don't want to end up with dementia and related illnesses, it totally sours everyone's view of you.

I completely agree that the disease is horrible, but your conclusion is bizarre. When you are in that condition, how anyone views you is the least of your worries.

  • sillyfluke 3 days ago

    Framing it as an obsession of rememberance or legacy distracts from the more crucial point: the fact that you will be causing chaotic emotional, psychological and physical distress in the real world to those you cared about. Again we should stop framing it as some weird obession with legacy and instead stick to the facts on the ground.

  • supportengineer 3 days ago

    Is your position that you don’t personally care how people remember you?

    • Noaidi 3 days ago

      Many people think badly about the mentally ill act when they are suffering through an episode. Should they be allowed to die by suicide because what people think of them after they come out of psychosis? Should embarrassment be the bar we are setting for suicide?

p0w3n3d 3 days ago

What you say is "you don't want to end up with mental state because people will hate you" but TBH mental illness, though really harsh on environment, shouldn't be viewed differently than any other illness like broken leg. When person is riding a wheelchair you don't tell them "hey you're a pain in the ass because you drive so slow and cannot jump on the stairs" - we tend to give them hand, help by building ramps and lifts. The same should be with mentally ill. Places safe for them, mabe remembering aids software in a watch?

teiferer 3 days ago

> it totally sours everyone's view of you.

That's just as much failure of everybody as it is of him. This was dementia speaking and society needs to learn that.

You wouldn't tell somebody with a broken leg to get it together and it's just their personality that they can't walk. Nor should you treat dementia like that. Yes, people seem to shift personalities and anger others. But those others need to understand that it's a medical condition, an untreatable and fatal one, so should have even more sympathy than with somebody who broke a leg (cause that will likely just be temporary). Not alienate the person and speak ill of them.

  • randcraw 2 days ago

    Imagine that the illness in question was unremitting and excruciating (unlike a broken leg), not only for you and the your loved ones, but everyone you come into contact with. And there's no hope it will ever get any better. That's what dementia usually becomes, and that inhuman level of misery can last for years until you finally slip away.

    No animal other than man would consider perpetuating that state of decline. An elephant would simply wander away to die, freeing their community from their struggle to simply keep breathing.

    I agree with Kahneman, at least that we all should seriously consider the cost of allowing that level of degeneration to consume us -- and more, the pain it inevitably will inflict on our loved ones -- and plan for it while we're still compos mentis.

  • pardon_me 3 days ago

    We are human. Unfortunately all of our experiences with others change our perception of them, no matter how much awareness of their motivations and our history with them. We can try to ignore it and have patience. Apologies can help but relationships will constantly change.

    It's certainly a failure point within us and something to be aware of to make effort towards understanding our own impact as you suggest. Sadly a problem with no full solution over long enough time periods.

supportengineer 3 days ago

I agree with you, I would not want people to remember me that way.

Folks I know who have passed on also wanted to be remembered when they were strong, not when they were ill.

femiagbabiaka 3 days ago

A society that sours on you due to an illness that’s totally out of your control seems a little inconsiderate to put it mildly.

  • bityard 3 days ago

    I don't think anyone was suggesting that it would be society's call to make.

    • femiagbabiaka 3 days ago

      Well sure — I’m not talking about euthanasia, I’m talking about compassion towards the aging. An 80 year old who has dementia needs community more than ever. If you’ve been there for your community and their opinion of your turns when you age, what is the purpose of community?

bryanrasmussen 3 days ago

>Instead he was that 83 year old guy who pissed off everyone, nearly blew up the neighbourhood, and drove like a maniac.

I find the people who remember him as this guy somewhat contemptible though, so I guess my theory would be he wasn't remembered badly by anyone whose opinion mattered.

But on the other hand I guess that's the way the world works.