Comment by kerkeslager 8 days ago
I disagree. OP is just asking for medical misinformation, and it would be irresponsible to provide it.
Self-assessed confidence levels are basically useless because the most confident people are generally the most ignorant. It's causal: ignorance causes people to be confident. The more you know, the more you realize how little you know.
> And your contribution is to stop people from helping them
No. In the vast majority of cases, answering this question as intended isn't helping them, it's actively harming them.
> because of something about what now
You're responding to a post which explains this. If you understood the post, faking confusion is dishonest. If you didn't understand the post, you weren't qualified to disagree with it.
This removes so much agency from the people involved. If I were dying of cancer and asked for "out there" solutions, I wouldn't want people hand-wringing about whether it's morally ok to share unconfirmed theories.
Gimme everything you got at all levels of certainty, and let me decide what I want to try and not try. If I decide I don't want to try anything, or none of the suggestions have enough evidence to be worth trying and I'd rather travel around the world and skydive with my wife the last few months, that's ok too!
But none of us can pretend to know what they're actually going through, we can only offer what it asked and let them decide.
> This removes so much agency from the people involved.
No. Filling people's minds with garbage non-information does not empower them. Knowledge is power. Random bullshit ideas isn't.
> If I were dying of cancer and asked for "out there" solutions,
OP isn't dying of cancer, and as far as I can tell, their friend who is dying of cancer did not ask for solutions of any kind.
You're trying to appeal to empathy here, but as far as I can tell, the person you're asking me to empathize with doesn't exist. There is no person dying of cancer asking for Hacker News' unqualified medical advice that I'm aware of.
The vast majority of people do not share the "move fast and break things" mentality--this is actually one of the main reasons people dislike corporate culture. This is especially true with medicine. Leave the poor cancer patient alone.
> Gimme everything you got at all levels of certainty, and let me decide what I want to try and not try. If I decide I don't want to try anything, or none of the suggestions have enough evidence to be worth trying and I'd rather travel around the world and skydive with my wife the last few months, that's ok too!
Agency isn't that easy. There are myriads of advertisers and propagandists out there trying to spin a narrative, and a lot of the hare-brained ideas out there exist because someone is trying to manipulate you--to buy a product, vote for a person, etc. These people are good at what they do, and even if you catch on to a few of them and dodge their bad ideas, a lot of them are going to worm into your brain and get you to do something they want you to do. Let me reitrate: what they want you to do, not what you, at a fundamental level, want to do. That's not agency, that's you being manipulated.
There is not a shortage of information, there is a shortage of effective filters of information that separate out the truth. Humans simply are not capable of sifting through all the garbage ideas out there, and that includes you (and me!). If you open yourself up to the full stream of garbage ideas, that doesn't give you agency, that gives your agency away to the advertiser or propagandist who happens to trigger your biases most effectively. You're not doing what you want, you're doing what they've manipulated you to want.
> But none of us can pretend to know what they're actually going through, we can only offer what it asked and let them decide.
Believe it or not, OP is not the only person to have a friend dying of cancer.
A friend of mine in college was diagnosed with lymphoma late in his sophomore year and died about a year after graduation. In his last years he became increasingly hostile to the well-intentioned people who kept offering genuinely stupid ideas for how he could cure his cancer. It isn't fun for cancer patients to have to politely listen to this particularly unhealthy way of coping with their death while they are trying to cope with their own death.
Reading other accounts of people with cancer, this is a pretty common complaint.
OP is asking for lesser-known possible treatments/trials/diets/whatever for a friend who is probably weeks to months from death. And your contribution is to stop people from helping them because of something about what now?