Comment by squigz

Comment by squigz a day ago

8 replies

I won't speak to functional support - there's plenty of responses here and even more resources easily available for that sort of advice.

But I would like to talk on how you (and others) approach this disability. There's a lot of commenters saying things akin to "blind people can lead a perfectly normal life, especially with all this tech!" - and I'm not saying a blind person can't lead a relatively normal life - but that sort of rhetoric can easily be misused to dismiss very real concerns we have, usually by able-bodied people. And it hurts. It makes you feel like you're the one in the wrong for complaining about being blind.

Being disabled in this way is *hard*. Do not pretend otherwise. Do not act like he's being unreasonable or ungrateful if he complains about his lot. Let him vent about it.

(I am not saying every disabled person should feel sorry for themselves all the time at the expense of personal responsibility. Nor am I saying every disabled person always feels this way. Just my own experience and that of many other disabled people I know.)

(I will mirror one piece of advice another commenter gave: make sure he gets involved with the blind community, at least at a young age, so he knows that's an option)

Der_Einzige 17 hours ago

I’m not blind or deaf, but the deaf community in particular has… a reputation…

I worry that so much of these “communities” exist as a cope for a shitty lot in life. Deaf community in particular has elements which are very hostile to correcting deafness.

And frankly, if I ended up going blind, don’t be surprised to find me lose the will to keep living if it’s uncorrectable. I wouldn’t blame anyone in this world who’d make that choice.

  • squigz 17 hours ago

    > I worry that so much of these “communities” exist as a cope for a shitty lot in life

    I mean... that's what they are, in some ways? I don't see how coping is a bad thing?

    • steve_adams_86 16 hours ago

      Coping is quite literally necessary. It’s the same for people with cognitive or psychological disabilities. The world isn’t organized or structured with you in mind… You need to cope with the immediate challenges and find solutions, and often you need to cope with the psycho-emotional aspect of living in a world that often works against rather than with you.

      It’s difficult. Not coping is a recipe for a really bad time. I think people without disabilities are uncomfortable with acknowledging the innate struggles.

      • Der_Einzige 16 hours ago

        I’m comfortable with it but most members of the various disability communities would not like me since, among other things, I strongly advocate for pre natal testing and elective abortion of people with serious issues like blindness.

        I think that being blind makes life not worth living. I’m extremely supportive of MAID and physician assisted suicidal for these exact reasons. “Coping” by telling those who don’t want to be forced into insular communities that they’re betraying their only “family” is disgusting.

        It’s the same thinking within aspie communities who like to pretend that Asperger’s isn’t actually debilitating or harmful. It is, and the world would be better off with a cure, not senseless separatism.