Comment by VagabundoP

Having had someone close go through it with Endo, the pain she'd deal with meant she could barely walk 100m and lost 20kg from being bed bound and unable to eat. Eventually Endo nearly killed this person it was so debilitating and only a hysterectomy managed to restore her life back to her, which obviously brought on early menopause.

Not all Endo suffers get that bad. But there's just no way of knowing if you're going to be one of the unlucky ones.

For QOL if you diagnosed, make some plans. If you want kids ever then make that your top priority, because it can effect fertility, and being pregnant can help.

Even when its seems like its gone, it might come back.

If your country doesn't have free public health insurance, get it and get good coverage, you don't want to be left hanging here.

The operations can really help for a time, but it depends on how good the surgeon is. Find a good one that listens to you.

Endo can gum up things and the scar tissue from ops can gum up your insides, and its a real messy treatment(laser ablation). Ovaries can get calcified etc.

If it gets bad bad - and you'll know what I'm talking about if it happens to you or someone you care about- do not put off getting a hysterectomy. There is no point in suffering in pain month after month and not having a life. If I had to do the last twenty years over again I would have counselled her to get the hysterectomy when she couldn't walk down the stairs without pain, after multiple hormone treatments and ops.