Comment by Terretta

EDIT: Developer included this in a summary:

"Comments on HIPAA: I'm 99% sure this does not apply, since the site is for patients and their families, and no doctors, clinics, hospitals, or insurance companies are involved. All information comes from the family, and stays in the family."

Insofar as no providers or non-family use this, developer may have a point: my comment's covered-entity reasoning can be disregarded.

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Not saying don't do YouTube, there's a persona who wants to learn from being talked to and shown.

But there's a less online (socially noisy) persona who prefers to read, see, and take in information far faster than a video. So don't skip the screenshots!

PS. I participated in the first patient centered groupware app 15 years ago, sold to the provider networks, so all providers a patient is ping-ponged to can interact as if a virtual team with the patient.

Your idea is viable, and giant hospital networks will buy it. But the top comment on this thread is likely dead right. You likely need to be HIPAA compliant for the providers to participate, regardless whether you sold the app to the patient or to the providers. Because unlike a personal notes app, your entire premise is info sharing among parties.

There is possibly a model for this that is technically outside HIPAA, but what you're showing / saying doesn't sound like it's navigated that.

Even if you use that potentially compliant model, it's then highly unlikely the providers will play ball, as then they'd have to be running as many apps as they have patients and they are too busy and already have to know too many systems. Even if they felt like setting a precedent of installing whatever apps patients ask them to use (they don't), the last thing they want is yet another place to redundantly key in information/communications. (They are required to have a record.) To get around that, you'd have to integrate with what they have, and boom, HIPAA again.